Wednesday, June 7, 2017

Trauma - with God all things are Possible to them that believe


  What you are going to see is a "change of heart".  What you will also see on these pages are very real. This is a true story. It is about our little family from Northwest Arkansas who has been given a very big miracle from God.  

You see our family was cruising along just over 13 years ago walking in the faith of God. Happy go lucky. Feeling highly blessed and favored.  We had a beautiful little girl at the time was 3. We were ministering to a church (doing home church on the front porch and dedicated everything we owned to God).   

That is when the bottom fell out of our floor.  The things you see on these pages are very real.  I have gone back and deleted some of the sentences because they hurt me so bad. I can't imagine what they did to our families who read them. Im so sorry I had no where to go with my grief. So I thought was grief. It was actually our faith being tested. I see this now with new eyes.  

This blog and none of the others that I have were ever meant to sow such sorrow and pain. It grieves me. But Jesus has assured me that I am forgiven after the 2 almost 3 longest weeks of my life without my family.  

First of all Trauma is never an easy thing for anyone.  I thought as strong as my husband and I are and our faith and God first in our family that nothing could hurt us. 

I was so wrong. We are flesh and bones. They say that words can't hurt you but I assure you that words can, do and will hurt you.  I have seen sides of me that I don't care to ever see again. 

You see one trauma of our daughter , then money, house, cars, sickness. etc it all grows. It grows exponentially.  We were very strong in our faith and still managed it was difficult. Then lack of sleep, tired, no rest, then your faith becomes contaminated with fear.  

This blog when I went back and deleted just repetitive remarks. I failed to see that I was looking for consolation in people and friends and family - everyone but God. I only realize 13 years later after being forced to stop and realize that I should have gone to God first. 

I put such a tremendous burden on my husband all he could do was say STOP to me. Im going to go more into the faith walk that I have come to in all this on our FunIntheSonfamily blog.  
My poor husband the burden he tried to carry for our family and for me it was unbearable. It was unbearable to me and so I burdened him with it. Looking back I imagine it would have been wise for both of us to go to God instead of checking out of each others lives. I see this now. 

My husband is the most loving, caring and giving individual that I have ever met in my life. He is so easy going and gentle and just kind. I love these qualities about him. He has always supported our family. There were job issues when this happened though because our sight was on worry instead of God. God always provided for us and we didn't always see it. I think we knew it but just got to busy, life full of chaos. 

Im thankful he has always been hard working. A bit jealous though because I always wanted to spend more time with him. He enjoyed working I now see that was his time away from the trauma. 

I felt I never got to leave the trauma and felt overwhelmed in so many ways. I was so tired. I tried to find my rest in so many things. I wanted rest in my husband, my girls, food, anything but where I should have gone for rest. 

My husband and daughter always offered to do things for me. They helped clean, cook and do laundry. I didn't feel rested. I was appreciative . But it wasn't the rest I needed. I hope they can forgive me.

I started these blogs to give people courage and hope. I wanted to share what God has blessed our family with. Not discouragement. So Im going back where the devil stole from me, from us and Im re-writing this story. I continued to write worry and fear in my pages and thoughts because I got lost in the worry and fear. 
I had some time in the past couple of weeks to stop and rest. To put God first again. I went back and I have apologized and repented Ive asked forgiveness.  God has forgiven me and lifted such a burden from me.  

I failed to get back to the way created me. Spirit first, Soul next, and then my body.  I was lacking in all three. You can't find happiness in others but you can find Joy in God. It is a fruit of the spirit. 
I was hurting so badly I didn't want to see my family walking in hell anymore. I was so tired all I could say is that I was tired. I heard my husband saying the same thing. Our daughters Physician has always made the comment to us that his families unfortunately don't ever see the end of PTSD ( Post Traumatic Stress Disorder).
Now we continue to pray and ask God to bring restoration to each of us as Individuals, to our marriage, our children. God brings restoration to our families in Jesus name. 

Choose Life- Deut. 30:15-18

15 “See, I have set before you today life and [t]prosperity, and death and [u]adversity;16 in that I command you today to love the Lord your God, to walk in His ways and to keep His commandments and His statutes and His judgments, that you may live and multiply, and that the Lord your God may bless you in the land where you are entering to possess it. 17 But if your heart turns away and you will not obey, but are drawn away and worship other gods and serve them, 18 I declare to you today that you shall surely perish.  You will not prolong your days in the land where you are crossing the Jordan to enter [v]and possess it. 

So the next several blog posts will be about this journey. It really made a difference in me. I needed healed. I wanted so bad to help my family I even became burdened with their burdens. They felt controlled. I took on so much baggage that I didn't need to.  

So to all those who you felt misunderstood ( as I did) and offended, please forgive me as Jesus forgives you.  

Blessedness of Forgiveness and of Trust in God.

A Psalm of David. 

32 How blessed is he whose transgression is forgiven,
Whose sin is covered!
How blessed is the man to whom the Lord does not impute iniquity,
And in whose spirit there is no deceit!
When I kept silent about my sinmy [b]body wasted away
Through my [c]groaning all day long.
For day and night Your hand was heavy upon me;
My [d]vitality was drained away as with the fever heat of summer. [e]Selah.
acknowledged my sin to You,
And my iniquity I did not hide;
I said, “I will confess my transgressions to the Lord”;
And You forgave the [f]guilt of my sin. Selah.
Therefore, let everyone who is godly pray to You [g]in a time when You may be found;
Surely in a flood of great waters they will not reach him.
You are my hiding place; You preserve me from trouble;
You surround me with [h]songs of deliverance. Selah.
I will instruct you and teach you in the way which you should go;
I will counsel you with My eye upon you.
Do not be as the horse or as the mule which have no understanding,
Whose trappings include bit and bridle to hold them in check,
Otherwise they will not come near to you.
10 Many are the sorrows of the wicked,
But he who trusts in the Lord, lovingkindness shall surround him.
11 Be glad in the Lord and rejoice, you righteous ones;
And shout for joy, all you who are upright in heart.

In faith and love, 
Paris 

My Prayer: 

Matthew 11:28-30New American Standard Bible (NASB)

28 Come to Me, all [a]who are weary and heavy-laden, and I will give you rest. 29 Take My yoke upon you and learn from Me, for I am gentle and humble in heart, and you will find rest for your souls. 30 For My yoke is [b]easy and My burden is light.”

Our story

SEPTEMBER 2003   
Abigaile was born September 2003.  Abigailes mom had a perfect pregnancy no complications. Abigiale decided though when she was going to be born and seemed to be bottom first and breach. The Dr. decided that it would be best for mommy and baby to have a c-section. 

  The family was going through a house renovation at the time and mom was doing some last minute chores and at 3 am one Sunday morning mom was not going to go to sleep. Abigaile thought it was her time to make her entrance. So off to take big sister to a friends house and off to the hospital with mom and dad and soon to be Abigaile.  We arrived at the hospital, got checked in as c-section wasn't schedule for a few more days. I walked and made no progress so Dr. said it was time for emergency c-section. A couple of hours later on Sunday morning we had our sweet girl Abigaile. The family who was watching Natascha brought new big sister to hospital. 
  It was one of the last visits that I had with the OBGyn that he told me that my labs showed group B Strep. it was too late in the pregnancy however to give me antibiotics for it and he felt it might cause harm to the baby. This was relayed to the women's hospital where Abigaile was born.  Abigaile was a beautiful baby and her scores were 8 and 9 respectfully the Pediatrician said. They did give her a blow by of oxygen to pink her up a bit. We had done all the pre-registering for vitamin k drops, the Hep B at birth we had a birth plan. 

  Things started getting a little strange at this point. They kept Abigaile quite some time giving her a bath, doing the eye drops, giving the Hep b shot. It was dad who decided to go and hunt her down to see if everything was okay. Dad finally found her , he said they were doing labs,etc and that the nurse would bring her in soon. It was still quite some time, I hadn't been able to nurse her or anything yet. I really wanted to see my baby already.  Then they finally brought the little beauty in to my room. The nurse said that they would bring her in so that I could try and feed her but that there seem to be a problem with her labs they noticed this when giving her the Hep B, and Vit K drops and giving her a bath. Her counts were elevated and it appeared she was born group B Strep positive. They had to put her on piggybacks and fluids of antibiotics, and tried several different antibiotics. It seemed none were working and she had a elevated temperature they were trying to get down as well. She also was a bit jaundice after a couple of days and no one seemed to have an answer for this one.  It was after many antibiotics and 3 days later we went home.  

NOVEMBER 2003
  We went for next week visit at Pediatricians office and everything seemed to be going well. She was growing and doing well. It appeared she was hitting developmental milestones. She was eating, sleeping, and doing all the things that infants do. She was even sleeping 4 hours and waking and 4 more hours and waking.  It was time for 2nd well-baby visit on November 2003.  It was also time for more vaccines.  I felt strange about giving her the vaccines but had been taught and told by every Pediatrician and even in school that vaccines are safe for everyone.  I had this sick feeling but said you know her sister had them and she was fine. We didn't really notice anything out of the ordinary with this visit she seemed to be growing and doing well. I remember her being a little fussy but nothing really stood out to me. I'm pretty observant with my children and definitely over-protective ask anyone who knows me they will tell you. 

FEBRUARY 2004
  It was February and where had all the time gone. It was time for the 6 month vaccine It was a little early but the Pediatrician went ahead and gave the vaccines anyways. I remember feeling odd that day and didn't want to give her the vaccines. It was to the point that I wanted to cancel the visit. I took her sister with me. We went in, got he green sheet, pink sheet and the whole rainbow of sheets of each of the vaccines given at that visit. I had to sign and date each one stating that I got them. I then got copies once the shots were given and went home. I still felt ill about this. I got home gave my little one a bath because that is what germ-phoebic ex nursing personnel do to alieviate getting sick.  Abigaile was crying and she literally cried all day. She was inconsolable. It was no matter what I did, feed her, rock her, change her, nothing worked I was told to give her infant Tylenol.  There was nothing that would work though.  She would seem to get better then cry a lot. Her eyes seemed to be crossing and rolling a lot. The pediatrician would say to bring her in, I did but when I would get to the Pediatricians office she was like a car being taken to the shop, she wouldn't do anything. I knew something was wrong, I knew I wasn't seeing these things happen its just why wouldn't they happen around anyone else. It was over a period of time that I watched my baby swell, her head, her arms, her legs, I thought at first she was growing but it was soon confirmed when her dad would come home after working long hours . She wasn't sleeping, she would eat but it was like she was trying to over-eat. It was the kind where there is something wrong with a baby usually they are sick or something and they just want to suckle all the time that is what she was doing.  Here are some of the pictures of Abigaile during this time. We watched our baby swell uncontrollably during this time as we tried to find help as to what happened and how we could fix it. We really had no help anywhere. 


APRIL 3, 2004 Our lives changed at this moment...

 We had a couple of friends over, playing music on the piano and guitar. We were doing a Bible study. Abigaile was in her bouncy seat and sitting on the couch.  We heard this choking noise and couldn't figure what it was. We looked over at Abigaile and she appeared to be choking. We looked at her pacifier but it was bitten off, there was nothing else she could have gotten. I called 911 as she was turned blue. I grabbed the bulb syringe from upstairs and started suctioning her. She was becoming no responsive. It was the longest night ever. Our friends stayed with Natascha that night as Abigaile and I took a ride in the ambulance and we went to the hospital. A watch overnight in the hospital. The attending Physician in ER was also the Dr. whom was the head of the clinic that our Pediatrician was at. They did labs, cat scan, and the verdict was infantile spasms or seizures.  In a couple of days we went home. They seemed to think the infantile spasm would go away but they didn't.  It was a nightmare to try and sleep I was so afraid to go to sleep I was afraid my Abigaile wouldn't wake up.  She would scream this high pitched scream everytime we would do anything, we didn't even have to do anything. We were turning on light switches and Abigaile would scream. I also noticed her getting this grayish color, the color was going out of her skin color. On April 7 , 8 Abigaile would have another episode while friends were over and we would call the ambulance again.  This time would result in a 54 minute seizure. The Dr. would come in, assess her, but didn't not medicate her to try to stop the seizure. We would learn later from the the nurse that he didn't think Abgiaile was going to make it. Damn him how could he not medicate her to stop the seizure? At the same time our oldest daughter would start running a 103* temperature. We got on our knees and prayed right there as we were so scared we would lose our Abigaile and then we decided to fight for her life. This time she was admitted for 3 days. She would have seizures every time they would give her a piggyback for her IV and anything they gave her. My mom and my uncle by marriage his brother who was a Pastor came to see us. There was NO other family who came to see Abigaile. The phone calls to see how Abigaile was were made by Allen or I. My aunt would come to see us once we got home. She couldn't stand to see our little one this way. We were told it was not normal for a baby this young to have seizures and we were being given a referral for Arkansas Children's Hospital in Little Rock that we could drive there and meet with the head of Neurology to see what she felt about Abigaile and seizures. This was April 14- 17. The Dr saw Abigaile and was holding her, she wanted to measure her head size it was 54cm (the size of a normal 3 year olds head) except this baby was 7 months old. She took one look at her and admitted her to the Unit to monitor her. I'm glad to know we drove 3 1/2 hours, I think she should have been life- flighted. She would undergo a battery of tests, a spinal tap (that they requested I step out of the room they were not going to let me stay.) She had a MRI and a battery of metabolic tests and panels. They kept asking what was different in our little girls life, what did she have. The only thing she had was breast milk and we knew that wasn't it. The Neurologist and different members of the team would ask "Do you think its the vaccines?" to this day it still gives me chills and makes it easier. I didn't know what it was but I did know that I wanted it to stop. We ended up with a book dose of meds but know what was wrong. We had her Pediatrician to order PT, OT, and speech.  They were to call us once we went home. I didn't sleep, for days sometimes, I was exhausted. Allen would go to work and have little sleep. 

Tuesday, March 21, 2017

I asked God to give me Strength and Wisdom

God gives power to the weak. And to those who have no might, He increases strength. Isaiah 40:29
I was at this place of being weak. 
I needed to know at what place I am - where am I suppose to go. 
I felt Abigaile was at a wall with her healing, her progress. Stagnant. Felling hopeless and helpless. 
This happens occasionally with families who have children with illness or special abilities. I know that there has to be better. 
God earlier in this battle impressed upon me that my child is healed. I know prayer works. I know that eating the diet God created works. When we get to a place of being stagnant it is time to move forward. 
What keeps us from doing this?
Fear.
Fear thou not; for I am with thee; be not dismayed; for I am thy God: I will strengthen Thee, yea, I will help thee, yea, I will uphold thee with the right hand of My righteousness. Isaiah 41:10
To overcome this FEAR we must remain in the will of GOd and we must TRUST GOD in order to retain FAITH. 
So it is Hope and Faith that we must remain in. 
Continue reading about your diagnosis, pray daily and find your promises in the word of God and claim it. 
I called to establish a new Dr. here for Abigaile. We were able to get into this clinic in a week. WOW ! we went to the visit there was no one else in clinic. We went through the assessment and at the end of the assessment we were referred to another Dr. in a nearby town. 
The original Dr. we saw called personally to get us in to the other clinic. 
He wanted to only speak with the office MGR or a couple of ladies at the clinic. 
This new clinic did not have an opening we found out later until November or December of 2017. 
The office MRg says- we had a cancellation (today at last minute ) if they can be here by 3pm we can get them in. We were about 45 minutes from clinic. 
We ended the current assessment - I checked out while the dad loaded the kids and we went on our way. 
We went to other clinic filled out intake forms and Voila we were sitting in the office with the new Dr. AMAZING how GOD works. 
It was a very stimulating and encouraging visit. I felt empowered because I felt God working in this. 
Before I knew it I was invited to attend a confernece the following weekend. I went and it was fantastic. I met some wonderful Practitioners , Doctors and leaned of so many modalities. Guess what? This is where we were stagnant. God gave me Wisdom and with that came peace. 
God is amazing! I will be implementing many of these things ( in moderation of course into our care plan). 
God is good and I ask God to bless these amazing people. 
The Lord is my light and my salvation; whom shall I fear? The Lord is the strength of my life; of whom shall I be afraid? Psalms 27:1
I sought the Lord, and He heard me, and delivered me from all my fears. Psalms 34:4
Thou shalt not be afraid for the terror by night; nor for the arrow that flieth by day. Psalms 91:5
The Name of the Lord is a strong tower; the righteous runneth into it and it is safe. Proverbs 18:10
….lo, I am with you always, even unto the end of the world. Matthew 28:20
I leave with you thoughts and prayers and ask the God of creation to bless your day...
 Also a huge thank you to those who blessed me this past week. There were several people in my life who knew me and didnt know me that allowed me to go to this conference and for this I am blessed.

The most important people who made this happen was my family. It was a huge sacrifice for them to let me know for that I am thankful.
My husband Allen is a rock and has supported me in so many things. I know many times even before himself. Im really blessed that God has given me such a man of God with such favor. He supported me in this and also was by handsome driver to and from every single day. He worked on driving, food and helping to keep things in order at home. He also packed our coach down and moved it with some friends. He planned this and pulled it off a lot better than I ever could have.
Our daughters especially Natascha I know she helped care for her sister and did things I normally would do helped with meals and making sure things were done at home. She is super awesome Im so thankful that she helped in this.
The thing that makes me happy is to see my family working together for something that is for our family.  Im very thankful that God has given me such a beautiful family.
I say this sometimes but I forget to let them know maybe each individual thing. No we don't always have to say thank you but we do need to let them know we appreciate what they are doing.
I thank God for my family- each of them.
There is nothing good about trauma but what it does it that it shows that each person is given a gift from God and that gift is their unique gift. Just because we don't see it as a gift doesn't mean it isn't important or it doesn't exist.
So thank you God first and foremost, Thank you my awesome family I love you - you truly are the best family ever that a momma could ever ask for. I really need to let you help me more often. I feel so much more fulfilled :)



Friday, October 7, 2016

update for winter

  I wanted to update on where we are at for the winter. We have been doing a new treatment/ therapy for Abigaile near North Texas. We love this area and plan to hopefully find some land to be able to park the bus and spend some time. This location is pretty central to everyone and everything.

We found a great therapy/ treatment for Abi here that I believe she will do great with. We have only worked on this for one week and then everyone got sick. When I say everyone I mean other kids at the therapy, the conductor, and even our family. We normally don't get sick - maybe a cold from over stress or work but not really this sick. I can't wait to feel better again.

We are applying for some work here so that we can transfer work here as well. We have had work, then scheduled time off then more work.  I think this will be worth it though.

It is also time to head back West for Physiotherapy for Abi and hopefully some more hyperbarics. These are therapies NOT covered by traditional insurance. Sadly. These are treatments and therapies that have worked significantly in Abigail's treatment plan.

So today we have started working on applications for campgrounds and planning our routing.  Also places to stay.  We have made this trip many times. The first time was all hotels and a mini van.

I thought we would never get there and I can't tell you how difficult it is to take clothing, dishes and cookware and then to find hotels with a full kitchen to be able to cook for Abi.

So we have found a couple of places that are a good potential. Now we wait. It is a $500.00 deposit per month and we can only stay 3 months. We need at least through Spring 2017 so that we can do therapy, treatments and also to be able to do school and work.

I won't complain about Southern California winters.

This means we can come back to Texas in the Spring and start looking for a new home. We have waited a long time to get this all worked out. One day I will write a book.

I will update our Coles pages site as well. http://www.colespages.org/AbigailesStory/pages/visit
We do appreciate those who have donated funds for travel or therapy for Abigaile. These expenses are paid for out of pocket or from a medical trust. They are not covered by traditional insurance.

God bless you all and thank you for your continued prayers,

The Golec family



Friday, September 23, 2016

Update on Therapy

Well we finally made it to Texas. It was not without repercussion though. I will tell you Chevy Chase should be calling us to play the next Lampoons vacation.

It has been no vacation.

A vacation is where you can not cook, not clean, not do your day to day work or chores. I want a refund lol.

So we had Dr. Jerrys appointment in Florida. It was a good appointment for both girls and it is always nice to see Dr. Jerry and David.

I am not a huge fan of Orlando though . We spent a couple of days there and then left.

We ended up with a lot of repairs this time.

We had a flat tire when we got to Orlando.  For those interested in what we did while there. Well we stayed at the campground a KOA. We had a flat tire on the coach 1 mile from the service center.

We also had a leak in our water system.

We stayed 3 or 4 days in Orlando just because we were tired and waiting to get tire fixed.

We then took a few days off as Allen has some time off from work.

We start a new therapy in Texas that we are excited to start. I think Abigaile will really do well.  I'm excited for her. I'm excited to meet her new instructor.  We are starting Conductive Education. I hope to combine this with Montessori.

We were suppose to start this week but had some delays because of mechanical things that have cost a lot of money. Cost a lot of time. It is about buying a 15 year old coach that was in great shape but its time to do the maintenance.

We will be starting some of our book work after the first week of therapy for school.  We have gotten a great history lesson starting some of our history and geography in July.

We were suppose to be going to the West Coast for Physiotherapy for the winter and Im not sure we will even be able to do that. http://polfit.com/testimonials/patientblogs.html

We are still getting unpacked. Cleaning out the coach and making repairs. We are all finally getting our body clocks adjusted to the the many times zones.

You can find her here http://www.colespages.org/AbigailesStory/pages/visit Please sign our guest book there if you haven't. We don't have a lot of contact with friends or family so it is very lonesome where we are at. We could use some friends and family.

I am really thankful to be back in the South :) Hopefully we can meet some new friends here.

I hope to share more about our road trip on the Beachnest.

Please sign our guestbook.

Remind me tomorrow to tell you about my deer hunting adventure while driving into Texas. We have some damage and quite a bit of damage on the trailer. As you know the freezer is in the trailer for the special diet.

When it rains it pours. Im looking forward to the Holy Spirit raining down and not the problems of this world. I will take God any day.

In faith,
Paris 

Sunday, September 18, 2016

Headed to home in Texas

This sure has been an eventful trip.  I can't wait to tell you all about it. We have so much to tell you.

Abigaile had a good visit with Dr. Jerry and we need to tweak and fine tune some areas.
We as a family will keep on keeping on.

So we start our new year in Texas.  We are still looking for housing and a place to stay.  We have a temporary place.  Our storage needs to be gone through.  We need to sell some things from storage.

We are looking for some land not too large but if someone knows of land in Texas (not in the desert ). I would be interested in knowing about it. It must be reasonably priced.  I am praying about this. Its very important for our family. Thank you for praying :)

I will update later here once we get back. Get unpacked. Upload all those pictures.
A lot of pictures!!!!!

I will also update the Beachnest.net.

Here I will update more of Abigail's progress. The Beachnest.net I will update the trip, our trials on this trip, where we stayed with photos and reviews, and of course, Food.

Many prayers go out to you all.

Please sign our guestbook and follow us. Our family really loves hearing from everyone.

( Don/t be shy )

lots of love,

Paris 

Friday, August 19, 2016

The end of this trip

So, our trip always eventful,

On the way here we stayed at 4 campsites.  We really stayed at good campsites and you can see our reviews of each on the website.

We had a good visit with Dr. Jerry always nice to see him and David.  We sure do miss the girls though.  I still expect to walk in the office and see Donna around the corner with Josh playing.

We got a good report from Dr. Jerry.  We have a lot of things to work on. We need to plump up little one just a bit.  This is always interesting. Going through those growth spurts and because our kids aren't getting growth hormones in their food - well our kids are normal and the growth charts are off.

Now its time to head back to Texas for some therapy and treatments. Its also time to start a new school year when we get there. I have lots of planning to do.

Thank you for praying for travel mercies for us.

We had a flat on the coach on the way here. We sat at a travel plaza over 4 hours and then came to the campground and had to move our trailer until 2 am went to bed at around 3. We literally have had no sleep while here.
Road service and Insurance both tried to mess us over . We just got it rectified today. We still don't have the correct tire on.
Im so thankful that God is still in control. The blessing is that it happen within a .5 mile of a service center. We were able to get someone to fix the tire and we had a place to go once it was fixed. Thank you Lord.

We were grateful to meet a CPA here that we can certainly gain some information from.

We also had a loss of meat in our freezer because of power outages in our campground in Arkansas.
We contacted the CSA to see if we could get meat before we left and then learned they had experienced a dust devil that knocked open some of their facility and were told we would be able to get a small package. Please be praying for them. They work hard to serve their coop.
We never hear back and then we had to leave for Dr. appt. - then the Blue Cut fire happened and so here we are.

I hope to have a lazy sort of trip planned for Texas from Florida .

We are heading back to Texas to do therapy and . I hope everyone on this coach dumps their phones, iPads, and computers. I need some serious family time with my best buds <3

with love,
Paris 

Tuesday, August 16, 2016

What a trip

Well this had certainly been an interesting trip.  We started planning this trip several months before we actually took this trip.

Who knew a trip for a Dr. appointment could be so interesting.

We planned the trip.

We planned the itinerary.

I planned food. I even made a week of pre-made meals for my girl.

We planned fuel stops.  We planned rest stops and campgrounds along the way.

It was almost too well planned.

The first couple of campgrounds were actually nightmares in that we had to unhook our vehicle and maneuver them onto lots that we were sold and didn't fit.

When we left we had little meat for our daughter.

The campground we were at in Arkansas lost power so many times because of a faulty box that all of her meat had spoiled. That and the excessive heat causing power outages. I had ordered the CSA on time for once and even did an extra order. The CSA was even having issues we found out at the last minute before we left.  They had a major dust devil storm.  Destroyed their freezer contents and other items. Please pray for them. This is awful.

I have cried with each and every package of spoiled chicken that I have opened because I only have about 5 more chickens to opened and Im pretty sure that with all the ones that are spoiled already that these will be spoiled as well. It breaks my heart.

We start towards Texas soon after the appointments that are here in Florida.  We had hoped to take a couple of days off in between therapy but it doesn't look like we will be doing that.

If I have to we may be making a 3000 mile journey across the US again to purchase meat. I really wish we had a contact out there that could help me with this.

We came into Florida and ended up with a huge chunk of tire peeling off on the coach and a motorist behind the coach getting my husbands attention to stop saying something about the back end of the coach.  We pulled over and he didn't initially see anything.  He went around again. I drove behind him for about a mile to thankfully the next roadside rest area with services. We ate dinner and the girls showered in the coach while we waited on road side service. And $900.00 later for a tire and service wow oh my gosh!!!!   There are many, many things to be thankful for thank you God for protecting us and keeping us safe from harm.

First, we had no clue about the tire. The tires were not worn or anything. It must have been some sort of defect.  We only bought the tires for the coach new 2 years ago.  They have sat on the coach for the past year though in the heat and sun.  Extreme heat.  This is not good.

Thank God for the man who got my husbands attention. I ask please for God to bless that man.  My babies were in the van with me in front of the bus which is why I didn't see all this. My husband radioed to me and we pulled over. Only by the grace and mercy of God did we not have a serious blow out. The tire never blew but it was not drivable. The entire treat shredded off the tire. It was getting ready to blow. If it had blown it would have blown the side of the wall off. Thank God it wasn't busy on the interstate. Thank God no one else was involved. No one was hurt. The coach was not damaged in any way. We are all safe thank God. Just thank God. Im also thankful for my husband who has the skill and knowledge on how to drive with this. He is amazing when it comes to driving this coach. He puts crazy hours in to fix things and never asks for anything in return. He works hard at work and then comes homes to spend countless hours trying to fix a coach that has a mind of its own. And then in his sweet little voice asks if he can finish dinner or washes dishes. He's a keeper for sure thank you God that you sent such an awesome man to me. I am thankful even though I don't always tell him. I am appreciative of what he does.

This price for these tires is insane. The labor for installing them they have not given us a receipt.
We got to the campground at our stop and was told we would have to split our equipment. Im really glad that I book this stuff in advance and take the time and effort that I do to plan.

We were told to take our trailer off and put it in front of coach, then told to put it behind the coach. We went to bed at 3 am.

We got up and got a phone call to move the trailer from the back to the front.

Then we were told we couldn't park our handicap van for our daughter on the same "handicap friendly" spot.  Well okay. Can you say this KOA bombs? We aren't new to this game. I have done several reviews on this campsite. They have not given me a good impression at all. I have never done a review for a campground prior to leaving.  They have just ruined our only day off and ruined our time here. We were asked by the manager what she could do to make this right and I told her nothing. There is nothing you can do to give me back the time or the time off with my family. We literally felt harassed by the workers the entire first day we were here.
I honestly can't wait to leave.

We just need to pray.  when junk happens in life. Just pray. When you feel like cussing someone. Pray. When you start saying that you see all other people as an issue . Pray. Pray for yourself to have the gifts of the spirit, and pray for others to have the gifts of the spirit. Life really is too short to not do this. Check out the www.Beachnest.net for updates on the rest of the trip and please sign our guestbook to say hi and that you were here. We would love to hear from those of you that we have stopped and talked with, prayed with and ministered to along the way.

Lord my prayer for this day: Please God Let us forgive and forget. All the junk of this world is not worth the people in our lives. Don't say your pray for them sarcastically, intentionally pray for them.

Blessings,
our family ( Allen, Paris, Natascha, and Abigaile ) 

Tuesday, July 26, 2016

Moving forward to the "Next Step"



We have not had an actual vacation in over twelve years. No time off. 

Someone please send us on a vacation- I'm tired of being an adult. 

We will be trying a new therapy in September this year and are very excited about it.  In the

meantime we have lab work and a Dr. appt. with Dr. Jerry to get out of the way first.  

What this involves is finding a "clean lab" not a hospital to get labs and a trip to either Florida or California to see the Doc.  

( This expense involves travel - fuel for coach and accessible van, a campground to park while in Florida or California for Dr. appt. and fuel to the next therapy)

We start a new therapy in September. This is exciting. I actually researched conductive education early on. In 2010 there was only one facility in Miami which wasn't financially possible at the time.  

Im praying one day for the house and the coach. Right now this is simplifying our lives I hope and we can save some funds as well as work on our relationships with one another. I hope to grow closer this way. God knows His plan for us He says we will prosper in all things ( Her. 29:11)

 ** Septembers therapy is in Texas. We will need fuel for coach and van as well as a campground while we are there for the month doing therapy. We need to be near the Lewisville, Grapevine or Carrolton, Denton areas.  God already knows this and He has it covered !  Provision. God is a God of provision in all things. Family, friends, food, housing, everything! Joy, Peace, Kindness, Meekness. Yes thats our God! 




We had hoped to then head to the west coast to do Physiotherapy at Polfit Wellness http://www.polfit.com/ourstory.html  if you look on the Testimonials page there is our Abigaile.  We had planned to do this in October.  I just don't see this right now. 

Hopefully one day I can devote more time to this blog and to our websites so that I can share photos and videos with you. 

With God all things are possible to those who believe in HIM ( God). 

Im so thankful to God that He has made all these things possible. Im thankful for a willing spouse who supports our family, me and our children. He has taken so much time off from work I hope and pray he never feels inadequate. He has been such a huge blessing in my life and I couldn't have asked for anyone who could be more perfect. Im so thankful he is my life partner. 

No things aren't always easy and they aren't going to be either. But its good to know that I have someone so supportive and loving like Allen is. I really feel like I haven't given him enough credit and don't give him enough credit. Im really asking God how I can do this. It must be a priority though I know that. 

I think taking some time off from all of this and just being a family would help. I also think to simplify our lives and getting back to basics would really help. I wish I could just really re-write the things that have happened. 

We are wrapping things up here and are praying for extra work in Texas while doing therapy, funds to get coach in order ( air conditioner that went out, batteries (6 of them) and our awning broke). We will also be praying for a place to stay in Texas while we do therapy. We are also praying for Abi to do well with this new therapy and for us to see progress. Progress is - not everyone sees the same results).  

I honestly will just be thankful to leave this place. I love the state it is my home state. I am just ready to move forward and to get this little girl working again and on the road to recovery. Im praying most of all for recovery of our family. Therapy, jobs, and all the day to day stress is hard work on all of us. 

We were all affected by this trauma but I know God is getting us through it. He has blessed our family in many ways and for that I am thankful. 

blessings to you all,
Paris xoxo




Friday, July 22, 2016

Where Feet May Fall

God
 I will call upon Your name
And keep my eyes above the waves
When the oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine.


Strand Beach at Headlands
Dana Point, California 

I wanted to write and update everyone on "Its that time to leave again".  Just so there are no false 

gossips out there.  It isn't that it really matters to me. 

I will write more tomorrow.   I wanted to change our page : ) 

Sunday, September 21, 2014

Just a quick note .....

     I will write more later- can't wait to share with you what blessings have been going on in our lives. We are going to be doing therapy this year on the East coast for many reasons. We are currently here and we will not have funds to go back to Southern California to do therapy.

     We have not done well with fund raising and therapy is not covered by insurance. The travel expense of hotels, fuel, food while traveling is expensive.  

    We have seen so many incredible milestones with Abigaile during traveling and therapy.  This year since August we have got to experience the East coast. She has really excelled. She is so much more talkative and more active. 

    This has become a rehabbing lifestyle and it is tough at times but we have God and we know God will provide. 

   Please follow us on Gofundme and our Coles page.  

God bless you for your thoughts and prayers and we thank you should God put it on on your heart to give as well. 

Please share our sites with your friends and families..... 

much love xoxoxo


http://www.colespages.org/AbigailesStory

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