Our days are spent doing 5-7 hours per day of intense therapy with Abigaile, and then usually another treatment on top of that so it makes for a very long day. This is five days per week Monday through Friday as well. It is time consuming and not a typical lifestyle. I will not lie to you and tell you that it is easy to do. It isn't. We have dedicated our season right now as a family and are committed to do what it takes to get her well, and get her body functioning. It is also a great deal of expense and sacrifice as we deal with many, many issues. We are thankful to God for the provision He has given to us, we are thankful to God as well as He has put many awesome people in our path for Abigaile.
We currently are doing Polfit- check them out I am pulling video's and pictures of Abigailes progress here. We started in June of this year (2012) and have done ** several weeks of therapy ( I'll edit this as soon as I can add it up on the calendar) I just changed schedules so that we aren't grouping our weeks all in one group. I am spreading them out. Abigaile loves her Therapists ( I think she must have started even understanding when they speak in Polish, as she comes home and tells us all about it) This is simply for Abigailes needs to be met.
Abigaile has been doing Hyperbaric Oxygen therapy as well at The Center for New Medicine with Dr. Jolly and the girls Mimi and Debbie. She has a schedule of 70 minutes in the tank with one of our family members who always goes in with her. She never "dives alone". This is for seizure precaution which by the way has never happened. Thank you Lord.
It has been two years ago this month since we have visited the wonderful folks at The Brain Treatment Center. We recently did an EEG just as a curious update (because of Abigailes progress) and got some wonderful news and progress report. I will post the EEG under the tab of TMS. I will need to check with the professionals ( our team of HBOT, TMS, and of course Dr. J) before we can say which therapy or treatment it was due to. We will be going back soon just waiting now to schedule and try to work everything in.
It is going to be a busy rest of the year. We desperately need time off, and have need for a vacation. If none of the rest of us deserve it I know for a fact that Abigaile deserves it.
She is my walking, soon to be talking, seizure free (controlled environment) 9 year old girl. We still have a very long ways to go but my baby is alive and making progress with that I attribute to God, His Grace, and His Mercy and that He is alive and well and still performing miracles today.