Sunday, September 21, 2014

Just a quick note .....

     I will write more later- can't wait to share with you what blessings have been going on in our lives. We are going to be doing therapy this year on the East coast for many reasons. We are currently here and we will not have funds to go back to Southern California to do therapy.

     We have not done well with fund raising and therapy is not covered by insurance. The travel expense of hotels, fuel, food while traveling is expensive.  

    We have seen so many incredible milestones with Abigaile during traveling and therapy.  This year since August we have got to experience the East coast. She has really excelled. She is so much more talkative and more active. 

    This has become a rehabbing lifestyle and it is tough at times but we have God and we know God will provide. 

   Please follow us on Gofundme and our Coles page.  

God bless you for your thoughts and prayers and we thank you should God put it on on your heart to give as well. 

Please share our sites with your friends and families..... 

much love xoxoxo


http://www.colespages.org/AbigailesStory

Friday, May 30, 2014

Instead of a new pair of shoes


  Well its not a prince fitting this show but it is my Cinderella.  

  Its funny how things happen and when you hear this story you will understand.  So in the midst of moving and packing we went for fitting of our sweet girls orthotic levelizers.

  We have been looking for a bus for a couple of years ( well actually more).  While looking we realized if we went over a certain length we would have to have a DOT physical. So while looking we found this great new Chiropractors office and I saw levelizers. So we set up a time with Dr Scott to get xrays and fitted. I am so thankful I did!
  I just knew somehow this would work. So today we took Abi for her levelizers and her feet are already correcting !  

  I want some!  Great things and many miracles with my little sweet pea.

Okay ... Back to moving.


Thursday, April 24, 2014

Just another day in Paradise ( just not of the Heaven variety )

  Just wanted to update before I get caught up and busy and no time to write.  It is time to move again.

Hey listen if you need a house sold- we are your family. I don't know what it is but every time for the past three houses that we have lived in.  The house is sold.  At this point Im ready to just tell people pay for our storage and we will sell your house.

  We have decided to pursue other interests.

We have decided to become bus nuts : )  What is that did you say?  Well it means that we are fed up
with the hotels and trying to maintain a safe environment for our daughter and taking matters into our own hands.  We have decided to make a trek across the country where they have lots of busses and to go looking for one.

Our lease is up soon and they owner wishes to not renew not even a couple of months as he doesn't want to get stuck in the lease. I really just refuse to lease another house. So off we go to storage. Hopefully we can sell some items ( like lots of items) .

We have been waiting on some things before we can do this.  We had our van in the shop twice now because of two different accidents on the same day. We also have been waiting on meat from the farm we have been purchasing from in S. California.  All of this has really put us in a very bad position as we can't have meat shipped through mail forwarding and we can't trust sending it to a hotel unless we are already there and can put it in our freezer.

We are also believing God for funds for Abi.s treatments and therapies for this year.  We will be heading back to S. California in the fall if we can secure enough funds.  We have had many issues because of Multiple Chemical Sensitivity Disorder and staying in rentals, hotels etc. the latex and chemical issues have ended us at ER more than once. We would like to be able to buy a motor coach type bus and renovate for Abi. This would be a safe and contained environment for her so that we are not over -exposing her to unnecessary chemicals.  Here is her Gofundme.com page please visit it- and if God leads to you give we will pray for you and if God leads you to pray for her or for our family we will pray for you as well. God bless you and thank you http://www.gofundme.com/7oo90k


So many things to be said about this passover and this moon. I believe it speaks volumes. 

Yet those who wait for the LORD Will gain new strength; They will mount up with wings like eagles, They will run and not get tired, They will walk and not become weary. Isaaih 40:31 NAS 

Saturday, April 5, 2014

Cauterize the Flesh ...

  Dear God,

     Why do we have to endure such pain and agony?  I don't understand.  I see my child struggle and 

try so hard.  I see the unconditional love in her eyes. She is so trusting, so happy, and so genuine. 


     

She makes me Happy, she makes me Sad,  she tries my Patience,  and one 

thing that she always does, is she gives me unconditional LOVE .








She was wonderfully made in the image of God in His Love, His Wisdom, His Faith

Grace, Mercy........


  I don't know or understand why God allows somethings to happen. I have had so many 

people to ask how can God do this?  I don't believe that God did this.  Man did this.

The outright greediness of man.  It was not a misfortune, nor was it genetic.  It was 

greed.  The very people who defend this happening are no different than the

Perpetrators that have allowed it to happen.  Please, please do your research and 

due diligence when you vaccinate your children.  I have repented giving these shots 

so many times to our daughter. 

God please cauterize my FLESH 

cauterize is to burn or freeze the flesh around a wound, usually to close off or clean the wound.)


Take my burdens from me, take this yoke 

it is heavy Lord.

 "Take My yoke upon you and learn from Me, for I am gentle and humble in heart, and YOU WILL FIND REST FOR YOUR SOULS.  "For My yoke is easy and My burden is light."  Matthew 11:29-30.


You see my family and I are not strangers to misfortune.  It happened the day that my 

husband and I said " I do" to God.  We were married in a small glass chapel in Arkansas .

We decided to not have just a traditional ceremony.  We had a second ceremony as well. 

This second ceremony was our marriage and we were married to do the work of God. 

God has held us to this. We may not always understand ( and we don't) why we go

through some of the things we do.  It is so God can shine. It is so that people see that we 

have more than ourselves to depend on, trust and follow.  

  I just can't tell you, explain to you what we have gone through.  I don't think anyone

see's it.  I think that many just are grateful it isn't happening to them.  

  The worst is seeing your child. A child so precious and full of love and she has endured 

so much.  I have watched this baby from the time she was born to now.  Let me show you 

show you some of her miles stones. 

  • 2003 my sweet pea was born ( normal pregnancy, no complications healthy baby).
  • 2004 after vaccines - seizures within 24 hours. 
  • Her body swelled so badly that her skin was full of fluids the back of her neck would profusely drip water because of the fluids, the toxins coming out of her brain.
  • She was still trying to make milestones but because of the hundreds of seizures per day she couldn't even function. We couldn't function. We had no help. No family help. No friends help. No church help (yes we were members at several churches over these years). 
  • I saw her fall, I saw therapist who would drop her because of the seizures.
  • I saw her struggle to eat. 
  • I would give her seizure medicine only to see her pass out or seizure worse. We later found out she was allergic to the seizure meds. Yes the only one approved for children her age.  
  • 2004-2009 we spent all of our savings, retirement and sold almost everything we had to try and keep our home. We spent all of our money to travel to different children's hospitals to find out what happened with our child. What we found is that there was nothing Genetic, there was nothing Chromosomal wrong. We found Doctors who would take our money and tell us they didn't know what to do. We kept pressing on. 
  • 2005 we found out that our daughter had a adverse reaction to her vaccines. We didn't believe in suing. We had a decision to make and so that our case would be logged into a data base for vaccine injured children.  
  • By this time we had almost lost everything but we were still handing on to our family and to our child. Nothing else really mattered. 
  • We reported on the VAERS voluntary reporting system. 
  • I have never felt so alone and abandoned in my entire life.  I know and my family knows that through all of this. God was always there. He is always here and He is always near. 
  • We spent until 2010 that this was kept in the court system.  We did win our case. We sold our house for what we owed on it, lost our car
  • 2010 we could no longer get home therapy or adequate treatments for our daughter. We sold our house, sold what we could and gave the rest away. 
  • We went to California with 1 truck of our necessities so that we could do treatments and therapy for our daughter. I can't tell you the progress she made there. It was amazing. I have seen this little girl thrive and thrive and thrive. It is GOD>>>>>> my husband was employed with a company in NW Arkansas - we took the family medical leave act.  After the three month leave, he no longer had a job. So we were jobless and seeing our daughter THRIVE.... 
  • 2013 we started getting low of funds. There are few funds left and we have to be good stewards of what we have left. We had to move on as we could not afford to live in California, we could not get a job, and so it was time to move on.
  • We came to HERE, the desert.  Again.  But God we have been to the desert before. Many times. Its when God wants our attention. We need quiet without interference. With out complaint.  
The reason for my post is that today I needed my heart transformed.  I needed a renewal 

of my mind and my spirit.  I heard children outside laughing, playing, little girls with 

their squealing... it was a Birthday party. My Abi had Birthday parties years ago when 

she was a baby and I would have the girls Birthday parties together because there were 

siblings who would come along and play.  However, this no longer happens.  I watched my

Abi's face as she could hear the children. Her sweet little eyes, piercing blue looks so 

innocent , trusting and beautiful.  She sort of grunts and makes inflections of sounds and 

tones - I could tell she was wanting to know what was happening. She smiles, goes on 

about her way of playing and I ask the daddy to take her out to her Amtryke bike.  They 

go riding down the street. He is pushing her along with the big handle on the back - she 

puts her little feet in the stirrups of the pedals and rides off. 

  I sat here and listened to the children with my heart breaking- just like it does so many 

times. I know my child is loved, she is loved unconditionally.  She is given so much love 

because we have nothing else to give her. You see she can't get caught up with iPhones,

stereos, TV, or anything else of this world. She doesn't care about clothes, her hair or 

where she is going to go. She knows when she has a seizure, when she see's other kids 

playing, laughing and running she says, "Bye His Stripes I'm Healed". Isaiah 53:5 is a verse

that we taught her very earlier on.  God I need to be cauterized.  Please cauterize my heart.  

  We have not had to do without.  We have not gone hungry.  We have not been homeless. 

I thank God and I praise God and His Holy name for this.  



  So in a short time, the landlord in the home we currently live in wants to sell. Again, we are looking for a home.  Except our home is not here. We are merely passing through this place.  I have never complained about my child I love this child more than anything. She brings light to so much darkness. Its so difficult to see how people judge her ability.  Its difficult as a parent to see a child not be able to enjoy Birthdays, family, friends because that child can not do what other children can by being mobile.  
  I like to think not everyone is so cruel, so callous.  I know this home, this Earth is temporary and I thank God for that. I will believe that until this Earth exists no more and the Messiah comes for His Bride (for us) we will wait on the Messiah....

I will leave you with this.... my Princess who has taught me much in trusting only in God! 

Thank you and God bless you to those of you who have given to our fundraising efforts.  Our efforts are currently focused on finding our next home and to move on.  

Here is what God tells me ... He has told me that Abi is Healed I believe His Word He does not lie !  
He has also told me this and therefore I do not rely on others of this world 

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. John 14:27

Much love to you all 
I will not fear ( fear is faith contaminated) 




Wednesday, March 19, 2014

Fundraiser for home and medical travel

     I am sure that most know about our Abi.  If not, you can scroll back to the days when it was by far

worse than it is now.  None the less we still have our bad days and so does Abi.  We have many

things going on right now.  One of those things is every time that we move to a new place we have

to deal with new people, new places and new things.  We also have to keep some people in there

because they have been sources for food, services, etc .  Its the nature of what we do to keep Abi

safe.

    If you don't know us. Abi has multiple chemical sensitivity disorder that stems from a vaccine

reaction.  The vaccine reaction is proven so I have no need to prove it to anyone else.  The case

was won.  We have gone through many trials and tribulations with this and Abi has come a long

way.  She has made an incredible amount of milestones as well.

     The fact is that multiple chemical sensitivity disorder can wreak havoc on the individuals life

as well as the family's life.  It is a nightmare.  I can say I am happy that we no longer deal with the

scented or fragrance life and Im certain we are all happier and healthier for it.  I will say that it is

no easy task and people seem to think or imply that we are strange because we don't have to use

chemicals.  I don't need to explain this to anyone.

    I can also say that with people who we have used for services, vendors, Dr.s , attorneys, friends,

family have also used us and treated us as though we are ignorant.  We are charged higher rates

than others because we set up a medical trust for our daughter.  I can't really tell you how many

people and how many times but its more than I can account for.


   When we lived in Arkansas our home state we owned our own home.  We were told we would no

longer be able to get services for Abi.  This was Physical therapy, occupational therapy, speech

we didn't receive state services and couldn't take our daughter to the clinics so our services were

discontinued because we needed to keep her safe by having therapy at home.  This is a position

to easily feel taken advantage of.

    We sold our home and all of our assets in order to move to care for our daughter and give her

opportunity to get better treatments, more treatments.  We sold everything and gave away the rest.

We lost our car, we lost our job after the Family Medical Leave Act ended .  It has been more than

difficult to get a job since then.  Our daughters care has remained first and foremost and it will

continue to do so.

    It is difficult moving as with the housing market in California we could not stay there as we

were in a position that we had to bid and raise the rent to stay in a home.  We were paying a crazy

amount of rent for a home.  Our salaries and funds don't allow for that.  We had to move from that

area in order to live.

  We are in a position that once again the landlord is selling the home we live in and are in need to

move yet again.  We are looking for a home to purchase but with the issues that Abi has and the

needs that she has it is really difficult to find a home.  This has also made it difficult to save funds

for therapy and treatments for rehabilitating her.

     I am starting a website for gofundme.org to raise funds for her for housing, travel, therapy and

we would appreciate any one who gives to this.  Our daughter was in grave shape when we started

with this situation and if we work with her now while she is young I believe she has a very good

opportunity to recover.  We have sold everything we have except for a few items that are necessary

for daily living.  Please share our story of recovery with everyone that you know.

  We hope one day to be able to buy a home for her that will fit her needs.  We want for her to have

a fun childhood not one of all therapy and moving and no play.  Can you imagine a child who can't

go to a public playground, or play with other kids, can't have a normal birthday party with cake and

ice cream.  These are things that would cause her harm.

  I will be posting the gofundme.  We also have an address at Coles pages to help with medical debt

that is not covered by insurance or other means.

Thank you and God bless you

Tuesday, March 11, 2014

Ten years ago and many, many milestones

 It is difficult for me to look at this as a 10 year anniversary and think of it as a celebration but it is.  I meant to write and blog so many times but it is not always convenient.  You see our days and hours are spent with our Abi. teaching her and letting her relearn skills that she started with and once had.

  I hold no grudges against anyone along the way who we have entrusted as Doctors or anyone who has tried to help.  I do feel that the attorneys and others who like to "claim as helpers"  well you were not.

  We have friends and family as well that didn't know always how to help or what to do.  We had other family members that caused a lot of grief.  I don't need to mention who these people are we will just leave it at that.


Is it a storm or is it a promise ?


  It has been a learning experience and I think that when our family started this venture which was before Abi was born had we known then what we know now we would have definitely had some anxiety.   We were pastoring a small church in Arkansas and have had God touch our family like anything we would have never believed possible.  I DO NOT believe for a moment that God caused or constructed any of this. I believe that there is an enemy and that enemy is from hell.  This enemy is out to take anything away or destroyed any of us who belong to God.

  He unfortunately tried it on my child.  That makes me very angry and I intend to do everything in my power to expose him.

We moved 1600 miles almost four years ago to S. California. It was a welcoming experience we met many awesome people.  We also saw our little girl thrive in some ways like she never has before.

We could no longer get enough funds to stay in that area for rent.  We lost our job after our Family

medical leave act ran out.  We know though that God has plans for Abi.  The landlord where we live in S. California became desperate to sell his house and he was so desperate that he kicked us out on the street and while we were packing to move he and his family came with a picnic and grandma and grandpa and had the nerve to ask us for toilet paper while they had a pool party.

I don't have time for fake people like this.  I am on a mission.

  We came East to get some dental work done and was working our way to Texas when we stopped and have decided to stay here for awhile.

Abigaile has made a lot of progress in ten years. I am not surprised she is a tough little cookie for Dr.s saying she would likely not live, much less never walk or talk.  They serve those fake Gods we have the DNA of the real God and only God.  So we don't accept that.

  In California we did several therapies and treatments and when we have secured a permanent for the time being where we are now. We will resume.  It is for now that we must stop, and rest and take in God.  Be in His presence.  We are also fundraising for the next time that we do go to S. California.

  Some milestones to add is that Abigaile is walking with canes now.  She just mastered this event this event almost ten years after her vaccine injury.  She is working on talking and we are still dealing multiple chemical sensitivity.  This is the thing that is difficult with this.  She is doing well but we need a home of our own for Abigaile so we can keep her in a safe environment.  It is very difficult
moving and trying to work around allergens and serious adverse reactions that are happening because of food and things that are in her indoor and outdoor environment that we can't change in rentals.

  We appreciate all of those of you who have prayed for our family and for Abigaile.  There is not one day that goes by that we not not praying for all of you. I am setting up a couple of fundraising sites and as well just place a Craigs list ad to sell more for more treatments and therapy.  Please pray that someone out there has a need for these items and that they find us.

  We aren't going to be negative with this Ten year anniversary of Abigiales injury we are using it for edifying the body of Christ.  You don't have to answer to me but we all have to answer to God.

Be blessed and many prayers.... we say that 

Its Just Another Day in Paradise ...

Wisdom

How to let it all go

Footprints One night I dreamed a dream. As I was walking along the beach with my Lord. Across the dark sky flashed scenes from my life. ...