T.M.S. https://www.braintreatmentcenter.com
We no longer participate in TMS as we felt during further research that it has a potential to no longer benefit Abigaile. We have researched other treatments focusing more on Physical therapy as this is where we are seeing a tremendous amount of progress.
TMS therapy should be something evaluated by the Physician and evaluated per patient.
http://www.braintreatmentcenter.com/
October 2010
When we came to California for treatment for Abigaile's vaccine induced injuries we were sent by her Pediatrician to The Brain Treatment Center for evaluation and to see if she would be a good candidate for treatment. We were not sure what to expect but considering that the specialists that we had gone to for treatments were saying she had a rare type of seizures called "Drop Seizures". The next thing that we were told is that there were no treatments or medications that worked for "Drop Seizures".
We went to The Brain Treatment Center where we met Dr. Yi Jin and Alex. We spent three months at the The Brain Treatment Center. Abigaile where she had an evaluation and an E.E.G.
(Electroencephalogram (EEG)
This MCSD or Multiple Chemical Sensitivity Disorder is really a nightmare. I will tell you though I believe that once you figure it out and I believe there are a lot more children, or people who have this are an easily misdiagnosed. I believe that after seeing what we have gone through with our daughter we are find- tuning her care to the point that there will be nothing left un-turned.
I have found that we have been able to treat Abigaile's symptoms mainly with a very healthy Organic diet. But.... you must make sure that it is Organic. it is not necessary to go throw everything away in the kitchen and start over but you will need to have that sort of mentality. Don't beat yourself up though if it doesn't happen over night. In fact, I would say to try and implement it over a period of time. Please make sure to talk this over with your child's Pediatrician or Doctor first and foremost. I am not a Dr. this information is relevant to my OWN child ONLY. Please do not take it as medical advice. I took information that was given to us by Dr.s, Specialists, and other health care professionals. I do nothing without my daughter's Dr.s approval or advice.
Our daughter has had reactions, not typical IGE or allergic reactions but anaphylactic seizures from known and unknown allergens. We don't see hives, I wish we could see hives instead.
The immunotherapy is normally a sublingual drop placed under the tongue but it was ordered for our daughter to be placed on the wrists because she is so sensitive and anything that she has a reaction to causes a rare type of drop seizure. So we have to be extra cautious.
I started the drops a week ago. We applied one drop the first day on one wrist and rubbed the other wrist across it until it was dry. She was fine. After 3 days I decided to apply a second drop and it was a day or two that she was having drop seizures and getting sick. I think she was just getting sick but not wanting to take chances because we are talking the immune system here I stopped the therapy as she had lots of mucous and so if she had a reaction to the immunotherapy then I would not have known because that is how it presents itself is through edema, swelling , drop seizures, then a tonic seizure. I would rather not take a chance so as soon as she is well again. We will start back again. I am enclosing the links above hopefully this can help give you more treatment possibilities if you have a child with severe allergies (sensitivities- for those of us who don't always show up on the allergy scale).
Some of the items that our daughter has a reaction to is some foods, everything prepackaged, preservatives, food coloring, dyes, additives, corn and corn solids, crayons, water colors, markers, glue, most clothing items unless it is 100% organic cotton, cleaning products (we used botanical products),toothpaste, most haircare products, we use everything botanical and organic that we can. She has had seizures with most medications as well due to the binding agents used so we use a compound pharmacy that is recommended by her Physician. We even have to be cautious with laundry detergent and dish detergents. There is NO restaurants, NO grocery stores (no not even Whole Foods or Mothers markets or any other grocery store ) that we can obtain food for her. There are many stores that she can not even go into because of the starch and sizing in the clothing. It is difficult for her to go into a fabric store, she can not spend a lot of time there. We purchased an all organic mattress with latex (a natural rubber substance) we have had it two years, she can tolerate sleeping 1-2 nights on it and no more as she will have drop seizures. She has had allergic reactions resulting in seizures from cups, detergents on others, another time was a therapist was burning candles at home then coming to treat our daughter and our daughter would have seizures.
I home school our daughters as the schools can not provide a safe environment for her. They can not provide food for her. When we are hospitalized, we prepare our own foods and take to the hospital for her.
We haven't had a vacation since she was born. When we have to travel, even over an hour away we take food with us and prepare in advance freezer meals. If we stay in a hotel we have to pay for an upgrade for an allergy free room and request a kitchenette to stay so we can prepare foods.
Her clothing, bedding and anything that she could come into contact with including other people can trigger seizures for her.
She can not have a normal birthday party with other children because of the chemicals and we have to make her cake home made because of all the allergens. We have done a few diet modifications trying many foods, elimination diet modification, Specific Carbohydrate, and Gluten Free Casein Free. We currently follow a rotation diet with elimination diet and we follow the Primal or Whole Foods diet modification. Please see food for our plan for food. She has many more foods that she tolerates now than she did when we started this at age 5 months. Please email me should you have any questions.
********** Please Read ******************************
http://professionals.epilepsy.com/page/table_drugs_induce.html
We no longer participate in TMS as we felt during further research that it has a potential to no longer benefit Abigaile. We have researched other treatments focusing more on Physical therapy as this is where we are seeing a tremendous amount of progress.
TMS therapy should be something evaluated by the Physician and evaluated per patient.
http://www.braintreatmentcenter.com/
October 2010
When we came to California for treatment for Abigaile's vaccine induced injuries we were sent by her Pediatrician to The Brain Treatment Center for evaluation and to see if she would be a good candidate for treatment. We were not sure what to expect but considering that the specialists that we had gone to for treatments were saying she had a rare type of seizures called "Drop Seizures". The next thing that we were told is that there were no treatments or medications that worked for "Drop Seizures".
We went to The Brain Treatment Center where we met Dr. Yi Jin and Alex. We spent three months at the The Brain Treatment Center. Abigaile where she had an evaluation and an E.E.G.
(Electroencephalogram (EEG)
A record of the tiny electrical impulses produced by the brain's activity. By measuring characteristic wave patterns, the EEG can help diagnose certain conditions of the brain.
We did the treatments 5 days per week. The treatments sessions were about an hour long per day that we went. The response that we saw from Abigaile was just incredible. She did stop the majority of her seizure activity. We also noticed more babbling and word sounds from her as well. She also wanted to stand and try to take more steps independently. Overall, the TMS treatments were a success. After the treatments, most days Abigaile did not have seizures or if she did they were provoked by the Multiple Chemical Disorder.
The video that you see above is the very FIRST treatment at The Brain Treatment Center. I apologize for the amateur video but you have to understand coming from a parent perspective we were so excited to see our child stop having so many seizures and to be able to function better. She has always had cognitive function and it was frustrating to see her lose those skills. Dr. Yi Jin and Alex at the Center were fantastic to work with as well. The thing that we liked about this treatment is that it is a non-invasive treatment and we each tried the paddle ( the black thing he is holding to her head). There is nothing at all that hurts the child. The clicking noise that you hear startles at first but after a few times you can see she was actually taking the paddle and placing it on her own head as if it made her feel better.
The TMS re-routes the seizure patterns so that they don't become a pattern. It uses noninvasive brain stimulation in an attempt to normalize neural activity. It operates on the principal of electromagnetic induction. The current passes through a wire coil that generates a magnetic field with a current. The magnetic current is able to penetrate the skin and the scalp and reaches the surface of the Brain. The EEG monitors seizure activity and responsiveness to external stimuli.
We felt that Abigaile was very responsive to this treatment. Abigaile has multiple diagnosis and we felt after three months treatments along with the advice and recommendation of her Pediatrician that we needed to move on to other treatments and therapies for her well being. It isn't to say that we won't go back to TMS, we may but for right now we have moved on to other treatment options. If you have an interest in TMS The Brain Treatment Center is linked on my sidebar for those who may be interested. Please give them a call and tell them that you saw them linked on Abigaile's Story.
MCSD and Treatments :
http://www.ingelsfamilyhealth.com/sublingual-immunotherapy-effective-alternative-treatment-for-allergies-and-asthma/This MCSD or Multiple Chemical Sensitivity Disorder is really a nightmare. I will tell you though I believe that once you figure it out and I believe there are a lot more children, or people who have this are an easily misdiagnosed. I believe that after seeing what we have gone through with our daughter we are find- tuning her care to the point that there will be nothing left un-turned.
I have found that we have been able to treat Abigaile's symptoms mainly with a very healthy Organic diet. But.... you must make sure that it is Organic. it is not necessary to go throw everything away in the kitchen and start over but you will need to have that sort of mentality. Don't beat yourself up though if it doesn't happen over night. In fact, I would say to try and implement it over a period of time. Please make sure to talk this over with your child's Pediatrician or Doctor first and foremost. I am not a Dr. this information is relevant to my OWN child ONLY. Please do not take it as medical advice. I took information that was given to us by Dr.s, Specialists, and other health care professionals. I do nothing without my daughter's Dr.s approval or advice.
Our daughter has had reactions, not typical IGE or allergic reactions but anaphylactic seizures from known and unknown allergens. We don't see hives, I wish we could see hives instead.
The immunotherapy is normally a sublingual drop placed under the tongue but it was ordered for our daughter to be placed on the wrists because she is so sensitive and anything that she has a reaction to causes a rare type of drop seizure. So we have to be extra cautious.
I started the drops a week ago. We applied one drop the first day on one wrist and rubbed the other wrist across it until it was dry. She was fine. After 3 days I decided to apply a second drop and it was a day or two that she was having drop seizures and getting sick. I think she was just getting sick but not wanting to take chances because we are talking the immune system here I stopped the therapy as she had lots of mucous and so if she had a reaction to the immunotherapy then I would not have known because that is how it presents itself is through edema, swelling , drop seizures, then a tonic seizure. I would rather not take a chance so as soon as she is well again. We will start back again. I am enclosing the links above hopefully this can help give you more treatment possibilities if you have a child with severe allergies (sensitivities- for those of us who don't always show up on the allergy scale).
Some of the items that our daughter has a reaction to is some foods, everything prepackaged, preservatives, food coloring, dyes, additives, corn and corn solids, crayons, water colors, markers, glue, most clothing items unless it is 100% organic cotton, cleaning products (we used botanical products),toothpaste, most haircare products, we use everything botanical and organic that we can. She has had seizures with most medications as well due to the binding agents used so we use a compound pharmacy that is recommended by her Physician. We even have to be cautious with laundry detergent and dish detergents. There is NO restaurants, NO grocery stores (no not even Whole Foods or Mothers markets or any other grocery store ) that we can obtain food for her. There are many stores that she can not even go into because of the starch and sizing in the clothing. It is difficult for her to go into a fabric store, she can not spend a lot of time there. We purchased an all organic mattress with latex (a natural rubber substance) we have had it two years, she can tolerate sleeping 1-2 nights on it and no more as she will have drop seizures. She has had allergic reactions resulting in seizures from cups, detergents on others, another time was a therapist was burning candles at home then coming to treat our daughter and our daughter would have seizures.
I home school our daughters as the schools can not provide a safe environment for her. They can not provide food for her. When we are hospitalized, we prepare our own foods and take to the hospital for her.
We haven't had a vacation since she was born. When we have to travel, even over an hour away we take food with us and prepare in advance freezer meals. If we stay in a hotel we have to pay for an upgrade for an allergy free room and request a kitchenette to stay so we can prepare foods.
Her clothing, bedding and anything that she could come into contact with including other people can trigger seizures for her.
She can not have a normal birthday party with other children because of the chemicals and we have to make her cake home made because of all the allergens. We have done a few diet modifications trying many foods, elimination diet modification, Specific Carbohydrate, and Gluten Free Casein Free. We currently follow a rotation diet with elimination diet and we follow the Primal or Whole Foods diet modification. Please see food for our plan for food. She has many more foods that she tolerates now than she did when we started this at age 5 months. Please email me should you have any questions.
********** Please Read ******************************
http://professionals.epilepsy.com/page/table_drugs_induce.html
TOXINS AND DRUGS REPORTED TO INDUCE SEIZURES
Support information on page: Drugs & Their Contribution to Seizures > Metabolic encephalopathy
Alcohols and glycols
- ethanol
- ethylene glycol
- methanol
- propylene glycol
Anesthetics, local
- bupivacaine
- cocaine
- lidocaine
- procaine
- proparacaine
- tetracaine
Anesthetics, general
- enflurane
- etomidate
- isoflurane
- ketamine
- methohexital
Antibiotics
- cephalosporins
- ciprofloxacin
- gentamicin
- imipenem/cilastatin
- isoniazid
- metronidazole
- nalidixic acid
- norfloxacin
- penicillins
Anticonvulsants
- carbamazepine
- ethosuximide
- phenytoin
- valproic acid
Anticholinergics
- atropine
- benztropine mesylate
- diphenhydramine
- optic cyclopentolate
- scopolamine
Antidepressants, cyclic
- amitriptyline
- amoxapine
- clomipramine
- desipramine
- doxepin
- imipramine
- nortriptyline
- protriptyline
- trimipramine
Antidepressants, other
- bupropion
- fluoxetine
- maprotiline
- mianserin
- trazodone
Antifungals
- amphotericin
- miconazole
Antihistamines
- astemizole
- brompheniramine
- chlorpheniramine
- diphenhydramine
- doxylamine
- hydroxyzine
- pyrilamine
Antineoplastics
- bleomycin
- busulphan
- carmustine
- chlorambucil
- cisplatin
- cytarabine
- mechlorethamine
- methotrexate
- vinblastine
- vincristine
Antiparasitics
- chloroquine
- oxamniquine
- pyrimethamine
Antivirals
- acyclovir
- amantadine
Asphyxiants
- acetylene
- butane
- carbon dioxide
- ethane
- methane
- nitrogen
- propane
Cardiovascular agents
- aprindine
- digoxin
- disopyramide
- encainide
- flecainide
- lidocaine
- lorcainide
- methyldopa
- metoprolol
- mexiletine
- osmolal
- propafenone
- propranolol
- quinidine
- quinine
- tocainide
- verapamil
Drugs of abuse
- amphetamines
- cocaine
- lysergic acid diethylamide (LSD)
- marijuana
- methamphetamine ("ice")
- phencyclidine (PCP)
Drug withdrawal
- anticonvulsants
- barbiturates
- benzodiazepines
- ethanol
- other sedative-hypnotic agents
Hypoglycemics
- insulin
- sulfonylureas
Hydrocarbons
- acetone
- benzene
- camphor
- ethyl ether
- eucalyptus oil
- methylene chloride
- nitromethane
- phenol
- pine oil
- toluene
- turpentine oil
- xylene
Immunosuppressives
- azathioprine
- cyclosporin
- glucocorticosteroids
Inhalants
- carbon monoxide
Insecticides
- benzene hexachloride (Lindane)
- carbamates
- organochlorines
- organophosphates
- pyrethrins
- rotenone
Insect repellent
- N,N-diethyl-m-toluamide (DEET)
Metal chelators
- deferoxamine
- edetic acid (EDTA)
- penicillamine
Metals
- aluminum
- arsenic
- bismuth salts
- copper
- iron
- lead
- mercury
Muscle relaxants
- baclofen
- albuterol
Mushrooms
- cyclopeptides
- monomethylhydrazine
- muscimol-ibotenic acid
- orellanine
- psilocybe
Neuroleptics
- thiothixene
- haloperidol
- lithium carbonate
Neuromuscular blockers
- atracurium
- tubocurarine
Nonsteroidal anti-inflammatory drugs (NSAIDs)
- ibuprofen
- ketoprofen
- mefenamic acid
- naproxen
- piroxicam
- phenylbutazone
- salicylates
Opioids
- alfentanil
- fentanyl
- meperidine
- morphine
- pentazocine
- propoxyphene
- sufentanil
Plants
- akee (hypoglycins)
- angel's trumpet (belladonna alkaloids)
- azalea (grayanotoxin)
- bleeding hearts (isoquinoline alkaloids)
- Carolina jasmine (Gelsemium)
- chinaberry
- Christmas rose (glycosides)
- daffodil (narcissine, lycorine)
- deadly nightshade (solanine alkaloids)
- golden chain (quinolizidine alkaloids)
- ground hemlock (Taxus)
- juniper (essential oils)
- jimson weed (solanaceous alkaloids)
- Jerusalem cherry (solanine alkaloids)
- mountain laurel (cytisine)
- mistletoe
- poison hemlock (Conium maculatum)
- rhododendron (grayanotoxin)
- rhubarb (oxalic acid)
- strychnine nux vomicus
- tobacco (nicotine)
- umbrella plant (essential oils)
- water hemlock (cicutoxin)
- yew (Taxus)
Radiographic contrast media
- diatrizoic acid
- iopamidol
- iothalamate
- meglumine
- metrizamide
- metrizoate
Rodenticides
- fluoroacetate
- phosphorus
- phosphine
- strychnine
- thallium
- vacor
Sedative hypnotics reversal agents
- flumazenil
Sympathomimetics
- amphetamines
- aminophenzole
- caffeine
- doxapram
- ephedrine
- etamivan
- flurothyl
- imidazoline class
- lobeline
- methylphenidate
- metrazole
- phenylephrine
- phenylpropanolamine
- picrotoxin
- prethcamide
- pseudoephedrine
- strychnine
- terbutaline
- theophylline
Vaccines
- measles vaccine
- pertussis vaccine
Miscellaneous
- allopurinol
- borates
- bromocriptine
- cimetidine
- colchicine
- corticosteroids
- cyanide
- cycloserine
- dantrolene
- disulfiram
- ergonovine
- ergot alkaloids
- erythropoietin
- famotidine
- fluoride
- hydrogen sulfide
- levamisole
- levodopa
- levothyroxine
- nicotine
- pimozide
- probenecid
- prostaglandins
- thyrotropin-releasing hormone
Adapted from: Koppel BS. Contribution of drugs and drug interactions (prescribed, over the counter, and illicit) to seizures and epilepsy. In: Ettinger AB and Devinsky O, eds. Managing epilepsy and co-existing disorders. Boston: Butterworth-Heinemann; 2002;155-173.
With permission from Elsevier (www.elsevier.com).
Reviewed and revised March 2004 by Steven C. Schachter, MD, epilepsy.com Editorial Board.
With permission from Elsevier (www.elsevier.com).
Reviewed and revised March 2004 by Steven C. Schachter, MD, epilepsy.com Editorial Board.
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