Wednesday, March 19, 2014

Fundraiser for home and medical travel

     I am sure that most know about our Abi.  If not, you can scroll back to the days when it was by far

worse than it is now.  None the less we still have our bad days and so does Abi.  We have many

things going on right now.  One of those things is every time that we move to a new place we have

to deal with new people, new places and new things.  We also have to keep some people in there

because they have been sources for food, services, etc .  Its the nature of what we do to keep Abi

safe.

    If you don't know us. Abi has multiple chemical sensitivity disorder that stems from a vaccine

reaction.  The vaccine reaction is proven so I have no need to prove it to anyone else.  The case

was won.  We have gone through many trials and tribulations with this and Abi has come a long

way.  She has made an incredible amount of milestones as well.

     The fact is that multiple chemical sensitivity disorder can wreak havoc on the individuals life

as well as the family's life.  It is a nightmare.  I can say I am happy that we no longer deal with the

scented or fragrance life and Im certain we are all happier and healthier for it.  I will say that it is

no easy task and people seem to think or imply that we are strange because we don't have to use

chemicals.  I don't need to explain this to anyone.

    I can also say that with people who we have used for services, vendors, Dr.s , attorneys, friends,

family have also used us and treated us as though we are ignorant.  We are charged higher rates

than others because we set up a medical trust for our daughter.  I can't really tell you how many

people and how many times but its more than I can account for.


   When we lived in Arkansas our home state we owned our own home.  We were told we would no

longer be able to get services for Abi.  This was Physical therapy, occupational therapy, speech

we didn't receive state services and couldn't take our daughter to the clinics so our services were

discontinued because we needed to keep her safe by having therapy at home.  This is a position

to easily feel taken advantage of.

    We sold our home and all of our assets in order to move to care for our daughter and give her

opportunity to get better treatments, more treatments.  We sold everything and gave away the rest.

We lost our car, we lost our job after the Family Medical Leave Act ended .  It has been more than

difficult to get a job since then.  Our daughters care has remained first and foremost and it will

continue to do so.

    It is difficult moving as with the housing market in California we could not stay there as we

were in a position that we had to bid and raise the rent to stay in a home.  We were paying a crazy

amount of rent for a home.  Our salaries and funds don't allow for that.  We had to move from that

area in order to live.

  We are in a position that once again the landlord is selling the home we live in and are in need to

move yet again.  We are looking for a home to purchase but with the issues that Abi has and the

needs that she has it is really difficult to find a home.  This has also made it difficult to save funds

for therapy and treatments for rehabilitating her.

     I am starting a website for gofundme.org to raise funds for her for housing, travel, therapy and

we would appreciate any one who gives to this.  Our daughter was in grave shape when we started

with this situation and if we work with her now while she is young I believe she has a very good

opportunity to recover.  We have sold everything we have except for a few items that are necessary

for daily living.  Please share our story of recovery with everyone that you know.

  We hope one day to be able to buy a home for her that will fit her needs.  We want for her to have

a fun childhood not one of all therapy and moving and no play.  Can you imagine a child who can't

go to a public playground, or play with other kids, can't have a normal birthday party with cake and

ice cream.  These are things that would cause her harm.

  I will be posting the gofundme.  We also have an address at Coles pages to help with medical debt

that is not covered by insurance or other means.

Thank you and God bless you

Tuesday, March 11, 2014

Ten years ago and many, many milestones

 It is difficult for me to look at this as a 10 year anniversary and think of it as a celebration but it is.  I meant to write and blog so many times but it is not always convenient.  You see our days and hours are spent with our Abi. teaching her and letting her relearn skills that she started with and once had.

  I hold no grudges against anyone along the way who we have entrusted as Doctors or anyone who has tried to help.  I do feel that the attorneys and others who like to "claim as helpers"  well you were not.

  We have friends and family as well that didn't know always how to help or what to do.  We had other family members that caused a lot of grief.  I don't need to mention who these people are we will just leave it at that.


Is it a storm or is it a promise ?


  It has been a learning experience and I think that when our family started this venture which was before Abi was born had we known then what we know now we would have definitely had some anxiety.   We were pastoring a small church in Arkansas and have had God touch our family like anything we would have never believed possible.  I DO NOT believe for a moment that God caused or constructed any of this. I believe that there is an enemy and that enemy is from hell.  This enemy is out to take anything away or destroyed any of us who belong to God.

  He unfortunately tried it on my child.  That makes me very angry and I intend to do everything in my power to expose him.

We moved 1600 miles almost four years ago to S. California. It was a welcoming experience we met many awesome people.  We also saw our little girl thrive in some ways like she never has before.

We could no longer get enough funds to stay in that area for rent.  We lost our job after our Family

medical leave act ran out.  We know though that God has plans for Abi.  The landlord where we live in S. California became desperate to sell his house and he was so desperate that he kicked us out on the street and while we were packing to move he and his family came with a picnic and grandma and grandpa and had the nerve to ask us for toilet paper while they had a pool party.

I don't have time for fake people like this.  I am on a mission.

  We came East to get some dental work done and was working our way to Texas when we stopped and have decided to stay here for awhile.

Abigaile has made a lot of progress in ten years. I am not surprised she is a tough little cookie for Dr.s saying she would likely not live, much less never walk or talk.  They serve those fake Gods we have the DNA of the real God and only God.  So we don't accept that.

  In California we did several therapies and treatments and when we have secured a permanent for the time being where we are now. We will resume.  It is for now that we must stop, and rest and take in God.  Be in His presence.  We are also fundraising for the next time that we do go to S. California.

  Some milestones to add is that Abigaile is walking with canes now.  She just mastered this event this event almost ten years after her vaccine injury.  She is working on talking and we are still dealing multiple chemical sensitivity.  This is the thing that is difficult with this.  She is doing well but we need a home of our own for Abigaile so we can keep her in a safe environment.  It is very difficult
moving and trying to work around allergens and serious adverse reactions that are happening because of food and things that are in her indoor and outdoor environment that we can't change in rentals.

  We appreciate all of those of you who have prayed for our family and for Abigaile.  There is not one day that goes by that we not not praying for all of you. I am setting up a couple of fundraising sites and as well just place a Craigs list ad to sell more for more treatments and therapy.  Please pray that someone out there has a need for these items and that they find us.

  We aren't going to be negative with this Ten year anniversary of Abigiales injury we are using it for edifying the body of Christ.  You don't have to answer to me but we all have to answer to God.

Be blessed and many prayers.... we say that 

Its Just Another Day in Paradise ...

Wisdom

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Footprints One night I dreamed a dream. As I was walking along the beach with my Lord. Across the dark sky flashed scenes from my life. ...