Friday, August 19, 2016

The end of this trip

So, our trip always eventful,

On the way here we stayed at 4 campsites.  We really stayed at good campsites and you can see our reviews of each on the website.

We had a good visit with Dr. Jerry always nice to see him and David.  We sure do miss the girls though.  I still expect to walk in the office and see Donna around the corner with Josh playing.

We got a good report from Dr. Jerry.  We have a lot of things to work on. We need to plump up little one just a bit.  This is always interesting. Going through those growth spurts and because our kids aren't getting growth hormones in their food - well our kids are normal and the growth charts are off.

Now its time to head back to Texas for some therapy and treatments. Its also time to start a new school year when we get there. I have lots of planning to do.

Thank you for praying for travel mercies for us.

We had a flat on the coach on the way here. We sat at a travel plaza over 4 hours and then came to the campground and had to move our trailer until 2 am went to bed at around 3. We literally have had no sleep while here.
Road service and Insurance both tried to mess us over . We just got it rectified today. We still don't have the correct tire on.
Im so thankful that God is still in control. The blessing is that it happen within a .5 mile of a service center. We were able to get someone to fix the tire and we had a place to go once it was fixed. Thank you Lord.

We were grateful to meet a CPA here that we can certainly gain some information from.

We also had a loss of meat in our freezer because of power outages in our campground in Arkansas.
We contacted the CSA to see if we could get meat before we left and then learned they had experienced a dust devil that knocked open some of their facility and were told we would be able to get a small package. Please be praying for them. They work hard to serve their coop.
We never hear back and then we had to leave for Dr. appt. - then the Blue Cut fire happened and so here we are.

I hope to have a lazy sort of trip planned for Texas from Florida .

We are heading back to Texas to do therapy and . I hope everyone on this coach dumps their phones, iPads, and computers. I need some serious family time with my best buds <3

with love,
Paris 

Tuesday, August 16, 2016

What a trip

Well this had certainly been an interesting trip.  We started planning this trip several months before we actually took this trip.

Who knew a trip for a Dr. appointment could be so interesting.

We planned the trip.

We planned the itinerary.

I planned food. I even made a week of pre-made meals for my girl.

We planned fuel stops.  We planned rest stops and campgrounds along the way.

It was almost too well planned.

The first couple of campgrounds were actually nightmares in that we had to unhook our vehicle and maneuver them onto lots that we were sold and didn't fit.

When we left we had little meat for our daughter.

The campground we were at in Arkansas lost power so many times because of a faulty box that all of her meat had spoiled. That and the excessive heat causing power outages. I had ordered the CSA on time for once and even did an extra order. The CSA was even having issues we found out at the last minute before we left.  They had a major dust devil storm.  Destroyed their freezer contents and other items. Please pray for them. This is awful.

I have cried with each and every package of spoiled chicken that I have opened because I only have about 5 more chickens to opened and Im pretty sure that with all the ones that are spoiled already that these will be spoiled as well. It breaks my heart.

We start towards Texas soon after the appointments that are here in Florida.  We had hoped to take a couple of days off in between therapy but it doesn't look like we will be doing that.

If I have to we may be making a 3000 mile journey across the US again to purchase meat. I really wish we had a contact out there that could help me with this.

We came into Florida and ended up with a huge chunk of tire peeling off on the coach and a motorist behind the coach getting my husbands attention to stop saying something about the back end of the coach.  We pulled over and he didn't initially see anything.  He went around again. I drove behind him for about a mile to thankfully the next roadside rest area with services. We ate dinner and the girls showered in the coach while we waited on road side service. And $900.00 later for a tire and service wow oh my gosh!!!!   There are many, many things to be thankful for thank you God for protecting us and keeping us safe from harm.

First, we had no clue about the tire. The tires were not worn or anything. It must have been some sort of defect.  We only bought the tires for the coach new 2 years ago.  They have sat on the coach for the past year though in the heat and sun.  Extreme heat.  This is not good.

Thank God for the man who got my husbands attention. I ask please for God to bless that man.  My babies were in the van with me in front of the bus which is why I didn't see all this. My husband radioed to me and we pulled over. Only by the grace and mercy of God did we not have a serious blow out. The tire never blew but it was not drivable. The entire treat shredded off the tire. It was getting ready to blow. If it had blown it would have blown the side of the wall off. Thank God it wasn't busy on the interstate. Thank God no one else was involved. No one was hurt. The coach was not damaged in any way. We are all safe thank God. Just thank God. Im also thankful for my husband who has the skill and knowledge on how to drive with this. He is amazing when it comes to driving this coach. He puts crazy hours in to fix things and never asks for anything in return. He works hard at work and then comes homes to spend countless hours trying to fix a coach that has a mind of its own. And then in his sweet little voice asks if he can finish dinner or washes dishes. He's a keeper for sure thank you God that you sent such an awesome man to me. I am thankful even though I don't always tell him. I am appreciative of what he does.

This price for these tires is insane. The labor for installing them they have not given us a receipt.
We got to the campground at our stop and was told we would have to split our equipment. Im really glad that I book this stuff in advance and take the time and effort that I do to plan.

We were told to take our trailer off and put it in front of coach, then told to put it behind the coach. We went to bed at 3 am.

We got up and got a phone call to move the trailer from the back to the front.

Then we were told we couldn't park our handicap van for our daughter on the same "handicap friendly" spot.  Well okay. Can you say this KOA bombs? We aren't new to this game. I have done several reviews on this campsite. They have not given me a good impression at all. I have never done a review for a campground prior to leaving.  They have just ruined our only day off and ruined our time here. We were asked by the manager what she could do to make this right and I told her nothing. There is nothing you can do to give me back the time or the time off with my family. We literally felt harassed by the workers the entire first day we were here.
I honestly can't wait to leave.

We just need to pray.  when junk happens in life. Just pray. When you feel like cussing someone. Pray. When you start saying that you see all other people as an issue . Pray. Pray for yourself to have the gifts of the spirit, and pray for others to have the gifts of the spirit. Life really is too short to not do this. Check out the www.Beachnest.net for updates on the rest of the trip and please sign our guestbook to say hi and that you were here. We would love to hear from those of you that we have stopped and talked with, prayed with and ministered to along the way.

Lord my prayer for this day: Please God Let us forgive and forget. All the junk of this world is not worth the people in our lives. Don't say your pray for them sarcastically, intentionally pray for them.

Blessings,
our family ( Allen, Paris, Natascha, and Abigaile ) 

Tuesday, July 26, 2016

Moving forward to the "Next Step"



We have not had an actual vacation in over twelve years. No time off. 

Someone please send us on a vacation- I'm tired of being an adult. 

We will be trying a new therapy in September this year and are very excited about it.  In the

meantime we have lab work and a Dr. appt. with Dr. Jerry to get out of the way first.  

What this involves is finding a "clean lab" not a hospital to get labs and a trip to either Florida or California to see the Doc.  

( This expense involves travel - fuel for coach and accessible van, a campground to park while in Florida or California for Dr. appt. and fuel to the next therapy)

We start a new therapy in September. This is exciting. I actually researched conductive education early on. In 2010 there was only one facility in Miami which wasn't financially possible at the time.  

Im praying one day for the house and the coach. Right now this is simplifying our lives I hope and we can save some funds as well as work on our relationships with one another. I hope to grow closer this way. God knows His plan for us He says we will prosper in all things ( Her. 29:11)

 ** Septembers therapy is in Texas. We will need fuel for coach and van as well as a campground while we are there for the month doing therapy. We need to be near the Lewisville, Grapevine or Carrolton, Denton areas.  God already knows this and He has it covered !  Provision. God is a God of provision in all things. Family, friends, food, housing, everything! Joy, Peace, Kindness, Meekness. Yes thats our God! 




We had hoped to then head to the west coast to do Physiotherapy at Polfit Wellness http://www.polfit.com/ourstory.html  if you look on the Testimonials page there is our Abigaile.  We had planned to do this in October.  I just don't see this right now. 

Hopefully one day I can devote more time to this blog and to our websites so that I can share photos and videos with you. 

With God all things are possible to those who believe in HIM ( God). 

Im so thankful to God that He has made all these things possible. Im thankful for a willing spouse who supports our family, me and our children. He has taken so much time off from work I hope and pray he never feels inadequate. He has been such a huge blessing in my life and I couldn't have asked for anyone who could be more perfect. Im so thankful he is my life partner. 

No things aren't always easy and they aren't going to be either. But its good to know that I have someone so supportive and loving like Allen is. I really feel like I haven't given him enough credit and don't give him enough credit. Im really asking God how I can do this. It must be a priority though I know that. 

I think taking some time off from all of this and just being a family would help. I also think to simplify our lives and getting back to basics would really help. I wish I could just really re-write the things that have happened. 

We are wrapping things up here and are praying for extra work in Texas while doing therapy, funds to get coach in order ( air conditioner that went out, batteries (6 of them) and our awning broke). We will also be praying for a place to stay in Texas while we do therapy. We are also praying for Abi to do well with this new therapy and for us to see progress. Progress is - not everyone sees the same results).  

I honestly will just be thankful to leave this place. I love the state it is my home state. I am just ready to move forward and to get this little girl working again and on the road to recovery. Im praying most of all for recovery of our family. Therapy, jobs, and all the day to day stress is hard work on all of us. 

We were all affected by this trauma but I know God is getting us through it. He has blessed our family in many ways and for that I am thankful. 

blessings to you all,
Paris xoxo




Friday, July 22, 2016

Where Feet May Fall

God
 I will call upon Your name
And keep my eyes above the waves
When the oceans rise
My soul will rest in Your embrace
For I am Yours and You are mine.


Strand Beach at Headlands
Dana Point, California 

I wanted to write and update everyone on "Its that time to leave again".  Just so there are no false 

gossips out there.  It isn't that it really matters to me. 

I will write more tomorrow.   I wanted to change our page : ) 

Sunday, September 21, 2014

Just a quick note .....

     I will write more later- can't wait to share with you what blessings have been going on in our lives. We are going to be doing therapy this year on the East coast for many reasons. We are currently here and we will not have funds to go back to Southern California to do therapy.

     We have not done well with fund raising and therapy is not covered by insurance. The travel expense of hotels, fuel, food while traveling is expensive.  

    We have seen so many incredible milestones with Abigaile during traveling and therapy.  This year since August we have got to experience the East coast. She has really excelled. She is so much more talkative and more active. 

    This has become a rehabbing lifestyle and it is tough at times but we have God and we know God will provide. 

   Please follow us on Gofundme and our Coles page.  

God bless you for your thoughts and prayers and we thank you should God put it on on your heart to give as well. 

Please share our sites with your friends and families..... 

much love xoxoxo


http://www.colespages.org/AbigailesStory

Friday, May 30, 2014

Instead of a new pair of shoes


  Well its not a prince fitting this show but it is my Cinderella.  

  Its funny how things happen and when you hear this story you will understand.  So in the midst of moving and packing we went for fitting of our sweet girls orthotic levelizers.

  We have been looking for a bus for a couple of years ( well actually more).  While looking we realized if we went over a certain length we would have to have a DOT physical. So while looking we found this great new Chiropractors office and I saw levelizers. So we set up a time with Dr Scott to get xrays and fitted. I am so thankful I did!
  I just knew somehow this would work. So today we took Abi for her levelizers and her feet are already correcting !  

  I want some!  Great things and many miracles with my little sweet pea.

Okay ... Back to moving.


Thursday, April 24, 2014

Just another day in Paradise ( just not of the Heaven variety )

  Just wanted to update before I get caught up and busy and no time to write.  It is time to move again.

Hey listen if you need a house sold- we are your family. I don't know what it is but every time for the past three houses that we have lived in.  The house is sold.  At this point Im ready to just tell people pay for our storage and we will sell your house.

  We have decided to pursue other interests.

We have decided to become bus nuts : )  What is that did you say?  Well it means that we are fed up
with the hotels and trying to maintain a safe environment for our daughter and taking matters into our own hands.  We have decided to make a trek across the country where they have lots of busses and to go looking for one.

Our lease is up soon and they owner wishes to not renew not even a couple of months as he doesn't want to get stuck in the lease. I really just refuse to lease another house. So off we go to storage. Hopefully we can sell some items ( like lots of items) .

We have been waiting on some things before we can do this.  We had our van in the shop twice now because of two different accidents on the same day. We also have been waiting on meat from the farm we have been purchasing from in S. California.  All of this has really put us in a very bad position as we can't have meat shipped through mail forwarding and we can't trust sending it to a hotel unless we are already there and can put it in our freezer.

We are also believing God for funds for Abi.s treatments and therapies for this year.  We will be heading back to S. California in the fall if we can secure enough funds.  We have had many issues because of Multiple Chemical Sensitivity Disorder and staying in rentals, hotels etc. the latex and chemical issues have ended us at ER more than once. We would like to be able to buy a motor coach type bus and renovate for Abi. This would be a safe and contained environment for her so that we are not over -exposing her to unnecessary chemicals.  Here is her Gofundme.com page please visit it- and if God leads to you give we will pray for you and if God leads you to pray for her or for our family we will pray for you as well. God bless you and thank you http://www.gofundme.com/7oo90k


So many things to be said about this passover and this moon. I believe it speaks volumes. 

Yet those who wait for the LORD Will gain new strength; They will mount up with wings like eagles, They will run and not get tired, They will walk and not become weary. Isaaih 40:31 NAS 

Saturday, April 5, 2014

Cauterize the Flesh ...

  Dear God,

     Why do we have to endure such pain and agony?  I don't understand.  I see my child struggle and 

try so hard.  I see the unconditional love in her eyes. She is so trusting, so happy, and so genuine. 


     

She makes me Happy, she makes me Sad,  she tries my Patience,  and one 

thing that she always does, is she gives me unconditional LOVE .








She was wonderfully made in the image of God in His Love, His Wisdom, His Faith

Grace, Mercy........


  I don't know or understand why God allows somethings to happen. I have had so many 

people to ask how can God do this?  I don't believe that God did this.  Man did this.

The outright greediness of man.  It was not a misfortune, nor was it genetic.  It was 

greed.  The very people who defend this happening are no different than the

Perpetrators that have allowed it to happen.  Please, please do your research and 

due diligence when you vaccinate your children.  I have repented giving these shots 

so many times to our daughter. 

God please cauterize my FLESH 

cauterize is to burn or freeze the flesh around a wound, usually to close off or clean the wound.)


Take my burdens from me, take this yoke 

it is heavy Lord.

 "Take My yoke upon you and learn from Me, for I am gentle and humble in heart, and YOU WILL FIND REST FOR YOUR SOULS.  "For My yoke is easy and My burden is light."  Matthew 11:29-30.


You see my family and I are not strangers to misfortune.  It happened the day that my 

husband and I said " I do" to God.  We were married in a small glass chapel in Arkansas .

We decided to not have just a traditional ceremony.  We had a second ceremony as well. 

This second ceremony was our marriage and we were married to do the work of God. 

God has held us to this. We may not always understand ( and we don't) why we go

through some of the things we do.  It is so God can shine. It is so that people see that we 

have more than ourselves to depend on, trust and follow.  

  I just can't tell you, explain to you what we have gone through.  I don't think anyone

see's it.  I think that many just are grateful it isn't happening to them.  

  The worst is seeing your child. A child so precious and full of love and she has endured 

so much.  I have watched this baby from the time she was born to now.  Let me show you 

show you some of her miles stones. 

  • 2003 my sweet pea was born ( normal pregnancy, no complications healthy baby).
  • 2004 after vaccines - seizures within 24 hours. 
  • Her body swelled so badly that her skin was full of fluids the back of her neck would profusely drip water because of the fluids, the toxins coming out of her brain.
  • She was still trying to make milestones but because of the hundreds of seizures per day she couldn't even function. We couldn't function. We had no help. No family help. No friends help. No church help (yes we were members at several churches over these years). 
  • I saw her fall, I saw therapist who would drop her because of the seizures.
  • I saw her struggle to eat. 
  • I would give her seizure medicine only to see her pass out or seizure worse. We later found out she was allergic to the seizure meds. Yes the only one approved for children her age.  
  • 2004-2009 we spent all of our savings, retirement and sold almost everything we had to try and keep our home. We spent all of our money to travel to different children's hospitals to find out what happened with our child. What we found is that there was nothing Genetic, there was nothing Chromosomal wrong. We found Doctors who would take our money and tell us they didn't know what to do. We kept pressing on. 
  • 2005 we found out that our daughter had a adverse reaction to her vaccines. We didn't believe in suing. We had a decision to make and so that our case would be logged into a data base for vaccine injured children.  
  • By this time we had almost lost everything but we were still handing on to our family and to our child. Nothing else really mattered. 
  • We reported on the VAERS voluntary reporting system. 
  • I have never felt so alone and abandoned in my entire life.  I know and my family knows that through all of this. God was always there. He is always here and He is always near. 
  • We spent until 2010 that this was kept in the court system.  We did win our case. We sold our house for what we owed on it, lost our car
  • 2010 we could no longer get home therapy or adequate treatments for our daughter. We sold our house, sold what we could and gave the rest away. 
  • We went to California with 1 truck of our necessities so that we could do treatments and therapy for our daughter. I can't tell you the progress she made there. It was amazing. I have seen this little girl thrive and thrive and thrive. It is GOD>>>>>> my husband was employed with a company in NW Arkansas - we took the family medical leave act.  After the three month leave, he no longer had a job. So we were jobless and seeing our daughter THRIVE.... 
  • 2013 we started getting low of funds. There are few funds left and we have to be good stewards of what we have left. We had to move on as we could not afford to live in California, we could not get a job, and so it was time to move on.
  • We came to HERE, the desert.  Again.  But God we have been to the desert before. Many times. Its when God wants our attention. We need quiet without interference. With out complaint.  
The reason for my post is that today I needed my heart transformed.  I needed a renewal 

of my mind and my spirit.  I heard children outside laughing, playing, little girls with 

their squealing... it was a Birthday party. My Abi had Birthday parties years ago when 

she was a baby and I would have the girls Birthday parties together because there were 

siblings who would come along and play.  However, this no longer happens.  I watched my

Abi's face as she could hear the children. Her sweet little eyes, piercing blue looks so 

innocent , trusting and beautiful.  She sort of grunts and makes inflections of sounds and 

tones - I could tell she was wanting to know what was happening. She smiles, goes on 

about her way of playing and I ask the daddy to take her out to her Amtryke bike.  They 

go riding down the street. He is pushing her along with the big handle on the back - she 

puts her little feet in the stirrups of the pedals and rides off. 

  I sat here and listened to the children with my heart breaking- just like it does so many 

times. I know my child is loved, she is loved unconditionally.  She is given so much love 

because we have nothing else to give her. You see she can't get caught up with iPhones,

stereos, TV, or anything else of this world. She doesn't care about clothes, her hair or 

where she is going to go. She knows when she has a seizure, when she see's other kids 

playing, laughing and running she says, "Bye His Stripes I'm Healed". Isaiah 53:5 is a verse

that we taught her very earlier on.  God I need to be cauterized.  Please cauterize my heart.  

  We have not had to do without.  We have not gone hungry.  We have not been homeless. 

I thank God and I praise God and His Holy name for this.  



  So in a short time, the landlord in the home we currently live in wants to sell. Again, we are looking for a home.  Except our home is not here. We are merely passing through this place.  I have never complained about my child I love this child more than anything. She brings light to so much darkness. Its so difficult to see how people judge her ability.  Its difficult as a parent to see a child not be able to enjoy Birthdays, family, friends because that child can not do what other children can by being mobile.  
  I like to think not everyone is so cruel, so callous.  I know this home, this Earth is temporary and I thank God for that. I will believe that until this Earth exists no more and the Messiah comes for His Bride (for us) we will wait on the Messiah....

I will leave you with this.... my Princess who has taught me much in trusting only in God! 

Thank you and God bless you to those of you who have given to our fundraising efforts.  Our efforts are currently focused on finding our next home and to move on.  

Here is what God tells me ... He has told me that Abi is Healed I believe His Word He does not lie !  
He has also told me this and therefore I do not rely on others of this world 

Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. John 14:27

Much love to you all 
I will not fear ( fear is faith contaminated) 




Wednesday, March 19, 2014

Fundraiser for home and medical travel

     I am sure that most know about our Abi.  If not, you can scroll back to the days when it was by far

worse than it is now.  None the less we still have our bad days and so does Abi.  We have many

things going on right now.  One of those things is every time that we move to a new place we have

to deal with new people, new places and new things.  We also have to keep some people in there

because they have been sources for food, services, etc .  Its the nature of what we do to keep Abi

safe.

    If you don't know us. Abi has multiple chemical sensitivity disorder that stems from a vaccine

reaction.  The vaccine reaction is proven so I have no need to prove it to anyone else.  The case

was won.  We have gone through many trials and tribulations with this and Abi has come a long

way.  She has made an incredible amount of milestones as well.

     The fact is that multiple chemical sensitivity disorder can wreak havoc on the individuals life

as well as the family's life.  It is a nightmare.  I can say I am happy that we no longer deal with the

scented or fragrance life and Im certain we are all happier and healthier for it.  I will say that it is

no easy task and people seem to think or imply that we are strange because we don't have to use

chemicals.  I don't need to explain this to anyone.

    I can also say that with people who we have used for services, vendors, Dr.s , attorneys, friends,

family have also used us and treated us as though we are ignorant.  We are charged higher rates

than others because we set up a medical trust for our daughter.  I can't really tell you how many

people and how many times but its more than I can account for.


   When we lived in Arkansas our home state we owned our own home.  We were told we would no

longer be able to get services for Abi.  This was Physical therapy, occupational therapy, speech

we didn't receive state services and couldn't take our daughter to the clinics so our services were

discontinued because we needed to keep her safe by having therapy at home.  This is a position

to easily feel taken advantage of.

    We sold our home and all of our assets in order to move to care for our daughter and give her

opportunity to get better treatments, more treatments.  We sold everything and gave away the rest.

We lost our car, we lost our job after the Family Medical Leave Act ended .  It has been more than

difficult to get a job since then.  Our daughters care has remained first and foremost and it will

continue to do so.

    It is difficult moving as with the housing market in California we could not stay there as we

were in a position that we had to bid and raise the rent to stay in a home.  We were paying a crazy

amount of rent for a home.  Our salaries and funds don't allow for that.  We had to move from that

area in order to live.

  We are in a position that once again the landlord is selling the home we live in and are in need to

move yet again.  We are looking for a home to purchase but with the issues that Abi has and the

needs that she has it is really difficult to find a home.  This has also made it difficult to save funds

for therapy and treatments for rehabilitating her.

     I am starting a website for gofundme.org to raise funds for her for housing, travel, therapy and

we would appreciate any one who gives to this.  Our daughter was in grave shape when we started

with this situation and if we work with her now while she is young I believe she has a very good

opportunity to recover.  We have sold everything we have except for a few items that are necessary

for daily living.  Please share our story of recovery with everyone that you know.

  We hope one day to be able to buy a home for her that will fit her needs.  We want for her to have

a fun childhood not one of all therapy and moving and no play.  Can you imagine a child who can't

go to a public playground, or play with other kids, can't have a normal birthday party with cake and

ice cream.  These are things that would cause her harm.

  I will be posting the gofundme.  We also have an address at Coles pages to help with medical debt

that is not covered by insurance or other means.

Thank you and God bless you

Tuesday, March 11, 2014

Ten years ago and many, many milestones

 It is difficult for me to look at this as a 10 year anniversary and think of it as a celebration but it is.  I meant to write and blog so many times but it is not always convenient.  You see our days and hours are spent with our Abi. teaching her and letting her relearn skills that she started with and once had.

  I hold no grudges against anyone along the way who we have entrusted as Doctors or anyone who has tried to help.  I do feel that the attorneys and others who like to "claim as helpers"  well you were not.

  We have friends and family as well that didn't know always how to help or what to do.  We had other family members that caused a lot of grief.  I don't need to mention who these people are we will just leave it at that.


Is it a storm or is it a promise ?


  It has been a learning experience and I think that when our family started this venture which was before Abi was born had we known then what we know now we would have definitely had some anxiety.   We were pastoring a small church in Arkansas and have had God touch our family like anything we would have never believed possible.  I DO NOT believe for a moment that God caused or constructed any of this. I believe that there is an enemy and that enemy is from hell.  This enemy is out to take anything away or destroyed any of us who belong to God.

  He unfortunately tried it on my child.  That makes me very angry and I intend to do everything in my power to expose him.

We moved 1600 miles almost four years ago to S. California. It was a welcoming experience we met many awesome people.  We also saw our little girl thrive in some ways like she never has before.

We could no longer get enough funds to stay in that area for rent.  We lost our job after our Family

medical leave act ran out.  We know though that God has plans for Abi.  The landlord where we live in S. California became desperate to sell his house and he was so desperate that he kicked us out on the street and while we were packing to move he and his family came with a picnic and grandma and grandpa and had the nerve to ask us for toilet paper while they had a pool party.

I don't have time for fake people like this.  I am on a mission.

  We came East to get some dental work done and was working our way to Texas when we stopped and have decided to stay here for awhile.

Abigaile has made a lot of progress in ten years. I am not surprised she is a tough little cookie for Dr.s saying she would likely not live, much less never walk or talk.  They serve those fake Gods we have the DNA of the real God and only God.  So we don't accept that.

  In California we did several therapies and treatments and when we have secured a permanent for the time being where we are now. We will resume.  It is for now that we must stop, and rest and take in God.  Be in His presence.  We are also fundraising for the next time that we do go to S. California.

  Some milestones to add is that Abigaile is walking with canes now.  She just mastered this event this event almost ten years after her vaccine injury.  She is working on talking and we are still dealing multiple chemical sensitivity.  This is the thing that is difficult with this.  She is doing well but we need a home of our own for Abigaile so we can keep her in a safe environment.  It is very difficult
moving and trying to work around allergens and serious adverse reactions that are happening because of food and things that are in her indoor and outdoor environment that we can't change in rentals.

  We appreciate all of those of you who have prayed for our family and for Abigaile.  There is not one day that goes by that we not not praying for all of you. I am setting up a couple of fundraising sites and as well just place a Craigs list ad to sell more for more treatments and therapy.  Please pray that someone out there has a need for these items and that they find us.

  We aren't going to be negative with this Ten year anniversary of Abigiales injury we are using it for edifying the body of Christ.  You don't have to answer to me but we all have to answer to God.

Be blessed and many prayers.... we say that 

Its Just Another Day in Paradise ...

Monday, August 19, 2013

Summer 2013 Beauty for Ashes

To appoint unto them that mourn in Zion, to give unto them beauty for ashes, the oil of joy for mourning, the garment of praise for the spirit of heaviness; that they might be called trees of righteousness, the planting of the LORD, that he might be glorified.  So reads Isaiah 61:3.... 

  I have been reminded of this verse many times, through many circumstances and have been to this place so many times.  I believe it is part of our maturity , growth and to humble ourselves before God and His very presence in our lives.  I think of God and I am brought to tears, to my knees in worship, in adoration of Him how He can love those who are so filthy and no worth of His praise but yet He adores His children, us.  

  We have dealt with many circumstances and I will tell you the deeper our faith the more humbling experience happens. I am just reduced to "ashes" . I am waiting for my beauty in all this and I believe that my beauty comes from praising God and to worship God through all this, that is my beauty. 

  To get an updated on our family please be sure to read our family blog for our latest experience.  You can find it here :  http://funinthesonthegolecfamilytimes.blogspot.com   I will update some photos of our time at the house in Cantata Drive.  We are praying for those who have wronged us and I believe that God will deal with them.

 Joel 2:25 tells us this:  
"Then I will make up to you for the years That the swarming locust has eaten, The creeping locust, the stripping locust and the gnawing locust, My great army which I sent among you.

  You know what, I am not perfect but I stand with and am in agreement with a perfect God, one who knows no sin and one who has forgiven our sins. I am praying for those who call themselves Christians and those who don't to be forgiven they are being misled by their flesh.  I have never seen anyone spitefully, hatefully and be vindictive to a family with a special needs child.  It is rampant. 


  I pray also for those who know we have had NO help and think that we are on some sort of vacation, I assure you this is no vacation.  I can't believe how many people call us to tell us of their wonderful trips and time off and how they are having such a good time. I just have no words for this. Its great that your having such a great time, but really you talking to a family who has done therapy for ten (10) very long years. We are talking 7 days a week with no option to stop if we want to help our child.  We have had minimal to no help during all of this.  We have not had the support from friends and family that I see for a lot of people or community and that is okay.  We have God.  I have not been away from either of my children for Sixteen (16) years and ten (10) of those years have been with a special needs child with no break.  


  We do not get to go shopping and leave our child with someone, we do everything with our girls and we do not have family or friends who have watched them.  Please do not take it wrong for those who have helped us along the way. We are thankful to those who have helped we have been very appreciative.  


  We have extreme allergic reactions, occasional seizures from multiple chemical sensitivity, therapy, treatments, we have to do a meal plan and shop at local farms (this is not convenient food or a drive through) we don't have a choice this is what we do to make our child well.  We have to wash clothes , eat, wash dishes and do many things that are different than most people because that is what we do to help our child.  


  We have stayed in a hotel since moving so that we can continue therapy and treatments for our child.  This is not a vacation.  This is reality and it stinks.  How would you like to stay in a hotel that your child is allergic to the food, the bedding, the dish detergent, the cleaning supplies used, the dishwasher soap, the sofa (polyester) the staff uses a fragrance in their cleaning supplies they are afraid to even clean our room anymore.  We look outside and see all the families who are able to visit the buffet bar (part of the price) go every morning to a pre made hot breakfast and coffee or juice for them and dinner three (3) nights per week that are made for them.  We can't enjoy these things. Do you know how it breaks my heart to see my little girl who can't eat this look at each of us with a plate and her little eyes light up and she says "Ummmmm" wanting some not even knowing what it is .. Its just different?  How about the swimming pool? We just spent a year and a half at a house in Mission Viejo with a pool so we could work on Abi.s balance and trunk control and yes so she could enjoy swimming and playing in the water. She loved it! She also managed to greatly improve on her trunk control and even ventured walking Independent in the pool (we of course were near her, but she had the self- esteem to walk independently.) This is what we wanted. Unfortunately, the landlord didn't have the same regard for Abi.s health that we do.  In fact, he sprayed chemicals and completely disregarded what he told him would could be harmful to her health.  It was a blessing to move even if it isn't the ideal situation.  So we sit here looking at all the kids, on summer break outside with their snacks, spraying sunscreen and playing in the pool. Abi sits here for hours looking at them outside the window. Unfortunately she can't join them and neither can her sister as the chemicals could cause her harm.  What do I do? I praise God for the day that she doesn't have to sit on the sidelines and watch other kids play. 

  So from here we have an address in Texas and we are looking to move soon. We have Speech therapy scheduled for a month in Northern Cal. and dental appointments.  Abi also has some dental appointments that will be taken care of before the year is over.  
  We are having to sell and give everything away again beside our personal effects and clothing and move on... 
                            its just stuff... 
          some wishing us well and telling us how bad they have it ... 
                                                    how they never get a break, 
         how they never get time away, 
                                          how they can't afford anything, our world needs more God!  They say that they know God,                 Do they really know the same God I know?     I wonder?                We gave everything to God, we no longer own anything. We like it this way.  I am reminded of this verse:
 Luke: 9:23 Then he said to them all: “Whoever wants to be my disciple must deny themselves and take up their cross daily and follow me.

  When people say that they can't understand, I don't think many can understand it is supernatural it is God. I don't try to pretend that it doesn't bother me it does bother me.  I let people think what they want. The people who truly know God knows and understands. If you don't understand try getting closer to God. 


  Our story and witness is about who we place our trust and faith in.  


Blessings 

Wisdom

Day #3031 Victims Impact Abigailes Birthday, 9-7-2025

  🦋 Anniversary of your mission birthday. I love you my beautiful Abigaile - you have given me a gift of life for all that you have shared ...