Sunday, September 30, 2012

Right to protect our Medical Free Choice


Dear Governor Brown,
  My family moved to the state of California 2 years ago in October.  The reason that we moved here is because of the medical care and more opportunity for our daughter who was injured by vaccines.  You see our case is a proven vaccine injury, and not speculation. We spent a few years traveling to different states to get care for her. There is more diversity in care to meet her needs in California.  We gave away most of our belongings, packed our rental truck and traveled 1600 miles. This was initially temporary because we weren't sure if the treatments would work or not.  After a few months of treatments several hours per day (5-7 hrs) and mostly 5 days per week to help rehabilitate our child to health we decided this was going to take more than a few months. We made the decision once our FMLA ran out and my husband ending up losing his job to stay here because of the quality and diversity of care for her. We sacrificed that and it has been more than worth it.
  I no longer give my child immunizations because my daughter had a serious adverse reaction that almost cost her life.  We felt that after even looking at the insert for the vaccines, since we were not able to show which vaccine actually caused the reaction, that it was in her best interest not to give any more vaccines.  We talked this over with her Physician and Pediatrician at the time as well as Neurologist and decided in our daughter’s best interest we would no longer give vaccines.  I have worked in the nursing profession prior to having children and since the reaction I have spent many hours doing research on the safety and efficacy of vaccines. If my daughter were to get another vaccine she could die. The way that AB2109 affects my family and my child is that I have already been educated on vaccines.  I don't need to take my child to another Dr. to tell me what I already know. It is invasive and my daughter already has a list of Dr.s and Physicians that are in other states who disagree with having to sign an exemption because it is not required in their state. It is an unnecessary expense for knowledge we have already researched extensively.  I don’t need a Dr who doesn’t know my child and who is ignorant of vaccine reactions I have already been through that and so has my child. I’m tired of her being traumatized by a group of medical Dr.s who say that vaccine reactions don’t happen. They do happen why else would the symptoms of the reactions be on package inserts even the drug makers aren’t that ignorant. If your child has a reaction, there is NO APPROVED TEST to find out if that happened. You spend thousands and hundreds of thousands of dollars already to find out what happened, NOT covered by insurance. My daughter is NOT autistic but has had many other debilitating and life-threatening issues that we still work on 9 years later. This bill is an invasion of my rights as a parent and places our family in a financial hardship as well as places our immuno-compromised child who was injured by a vaccine through more unnecessary Dr visits that we spent the last 9 years doing already. This bill demands & forces parents against their will for time, money and research that parents have already done. If you wish to give parents more education then give it at well visits every time, isn’t that what well visits are for? Put it on the C.P.S. and Health and Human Services web sites. If families receive public assistance, give it to them then and ask them to sign in? I’m sure that you would get a more positive response from all parents. Don’t you think? I’d like to invite you to my daughters website it is somewhat incomplete due to the 7-9 hours of therapy per day to fix the damage that the vaccines did.  My daughter’s prognosis was that IF she lived she would be a vegetable, if not she would die. Thank God she is neither but it isn’t just because of the Dr.s we worked with I have been active in my child’s care and making recommendations as the Dr.s and specialists have.  Please VETO AB2109 for the benefit of the child(ren). There are parents who love and care and research for their children.  We do not live in a third world country. We have a wealth of knowledge, resources and parents who desire to help their children succeed. VETO AB2109 for Abigaile and for other kids who need individualized care. All kids need individual care they aren't cookie cutters, otherwise why do Dr.s do individual health care plans for each patient. Children are no different.

Sincerely,
Paris Golec     http://abigailesstory.blogspot.com/

Friday, September 7, 2012

Happy Birthday little Sweet Pea ! We love you !

 My little sweet pea Abigaile was born just after 11:00 am.  We were over-joyed at the thoughts of another little one for Allen and I who prayed for the baby to be healthy and well, and for Natascha to have a baby (sibling to play with) we did not know what sex.  
  We have our then friends Matt and Deanna who watched Natascha and took her to church for us so she didn't miss services and she could still have fun. She slept at their house for a few hours and later that day she had a baby sister. 
  Abigaile, you name stands for strength, look at Abigaile in the Bible who was a woman of great strength this I know that you are and will be a great woman of strength one day. 
  Abigaile you have filled our lives with Joy, Happiness and faith!  
  We have watched you from getting injured from the vaccines, and not knowing if you would live one minute to the next day but we always had faith that God is not a killer, God gives life. He gave you life and He gave you to our family.  You are an awesome testimony of healing and hope and Joy!  
  Even though you won't have and never have had what everyone else knows to be a normal Birthday we ( your dad, and I and Natascha ) will do the best we can to play with you, make you happy and have a lot of fun with you on your birthday. 
  My prayers for you is life, happiness, to overflow with Joy. I pray for exceeding Joy for you the rest of your days. I pray for protection from the ugliness of the dark and principalities of dark. 
  I pray for you that you fulfill Gods call on your life. My prayer is abundant life until it overflows.  You have given us some of the most trying past 9 years but I would never trade them for anything. I just wish that you would have never had to get injured from the vaccine that is my greatest wish of all. 
  I pray little sweet pea that your day is blessed beyond measure and that God richly blesses you today and many more days to come. 

love you sweet pea,
your mommy <3

Monday, September 3, 2012

Stay tuned ...

  I am in the process of updating Abigaile's blogspot to all the great things that have been happening.  We are also super busy in the respect that we live therapy, treatments, making food, school.  The therapy and treatments with drive time end up being a eight ( 8 ) - ten (10 ) hour day.  We have 7 - 8 hours alone of just therapy.  We spend weekends cooking and doing laundry now.  The three day weekend is great because we can spend a day with laundry, cleaning house and cooking and actually rest a day. Our Labor Day today will be spent ( at least part of it) in the pool.

Happy Labor Day everyone !


Sunday, May 27, 2012

The overall Story

This is my daughters story her name is Abigaile.  In 2003 she was vaccine injured. We are proven, not speculation. This vaccine reaction has changed has affected our entire immediate family and has affected each of our lives. Our daughter with in 72 hours started excessive crying, her eyes darting, her body swelling. Her head and her entire body began to swell. She had a 54 minutes seizure that the ER Dr. walked out of the room, didn't medicate her or anything and said she wouldn't make it. I don’t think at the time that we even began to know how our lives would change. We first would be denied that anything was wrong with our daughter from the Pediatrician who gave her the vaccines. Our daughter had 2 life-threatening seizures after the vaccine. We were told with our child having seizures and her body seemed to be swelling by the minute (this we would learn later was her having an anaphylactic reaction to the vaccine).  Get in your car and drive almost 4 hours to talk with a Pediatric Neurologist at Children’s Hospital so You can find out what is wrong with your daughter. So late at night we are driving 4 hours after my husband gets off work to Children’s to find out what happened with our baby who is now 5 months old. The Neurologist took one look and admitted her. Our diagnosis included Encephalopathy, developmental delays, left eye exotropia, seizure disorder, malnourishment (later would determine it was actually malabsorption) the list was huge but we didn’t have a diagnosis. Every professional we came in contact with asked about if she had vaccines and we said yes. The time correlated, yes. There was not one professional medical Doctor or Specialist that we came in contact with that would admit it. We spent the first 5 years of her life doing trauma care for her. We spent the first 5 years of her life going to specialists, Doctors, and Genetics and Chromosomal testing. All came back negative. We (my husband and I) finally determined it was vaccines when the Genetics physician @ Children’s took off his lab coat and said “if it were my child here’s what I think?” We went to our Pediatrician told her of our findings asked her what she thought she said she didn’t know but thought it could be. I asked her and her nurse to file a VAERS report, they REFUSED. I ended up going to the County Health Dept. so they would file a VAERS by a nurse who didn’t know our child or us. We were given X number of words to explain what happened. I asked if someone would be contacting us, the nurse said no not likely they usually don’t unless they have a question.  Our daughter was very sick and wasting away we found she was not absorbing her fats amongst all the other issues.  We ended up leaving our Pediatrician to go with another and found help online through the NVIC.org. Over the past almost 9 years now we have gone through numerous Dr.s, Pediatricians, and other Health professionals most were caring but we were left each time that no one knew how to treat our child for vaccine injury. We had to obtain prescriptions from the Dr long distance that was treating her and go to Dr.s in our area, as our insurance wouldn’t pay for the Dr. who was actually treating her.  We did find a fantastic Pediatrician who would have to treat our daughter long-distance via phone and computer as we no longer had money, or savings this injury had taken everything we had and saved.  Our house went into foreclosure twice we eventually sold it, as we couldn’t keep it up or the payments with all the medical debt. We lost cars, and my husband eventually lost his job. We haven’t had a vacation in 9 years. We have friends and family who no longer speak to us, as they can’t understand why we don’t buy gifts at Christmas or any other time of year. My husband has not been able to get a job since. Our daughter has Multiple Chemical Disorder that was caused by the vaccine due to an acidosis that happened. She can’t eat anything with preservatives, dyes, or flavored. She can only wear 100 % cotton clothing and shoes. She has never had a store bought Birthday cake or had a normal birthday party. She can’t go to public school as they can’t provide a safe environment for her or feed her. When we go to the hospital we prepare all of her foods in advance and have to take them with us. If it is out of town or we travel we prepare all of her foods in advance and freeze them.  There is no store, restaurant or any other facility that we can take her to eat at. She has seizures from preservatives and scented items.  Someone’s laundry detergent can cause her to seizure. Our family’s resources have been devastated and family members no longer speak to us because we can’t pay back loans from years ago for the foreclosure on our home. We have to purchase all of our foods Organic, no corn, no soy and no fertilizers, no dairy, and no meat that has even eaten corn. We go every other month and purchase from an organic co-op that we are members of to buy meats for our family and shop a local farm for produce. Our daughter has seizures from it even if the fertilizers are organic. Our daughter has a medical trust to help pay for her medical care the rest of the family can’t afford medical care. We can’t get state insurance as we can’t afford the deductibles or we are denied most plans because of our daughters trust even though we can’t personally use the trust. A judge and Trustee determine what we can and can’t spend for our daughters care. We personally benefit nothing from this trust.  Our days are spent with therapy from sun up until sun down, we have to prepare from scratch all of her foods including breads, tortillas, pita chips (you won’t believe the foods she can eat) she can’t play with other children if she gets ill, there are NO antibiotics that she can take as they are all bound in corn and corn solids. We get her meds from a compound pharmacy (more costs).  We have to home school both of our children because of the sick issues. We have to home school our daughter because the schools can’t provide food or a safe environment for her.  Our daughter has anaphylactic seizures to crayons, paints, and glue. The vaccine injury changed all of our lives. Our daughter was that percentage of .0005 that a severe life-threatening reaction that rarely happens. We were told she would never walk, talk, and she would be a vegetable the rest of her life. Thank you for hearing our story it is a small portion but this is the reality of vaccines in our lives and how it has impacted our family. We are thankful for our daughter and the progress and recovery we have made with her but it has been at a sacrifice of the rest of our family. You truly find whom your friends and family are when you go through this.

Abigaile's Story

  I am reposting and starting a new blog of Abigailes Story as I had another blog that was on an old ISP that I haven't been able to reactivate.  I will be transferring the information over to this blog page by page. I have been unsuccessful in transferring the blog information as I can't always sign on to it and don't remember passwords to the Photobucket where I had many pictures. But they refuse to give me my password and userid (I have forgotten them because of too many userids and passwords) the old email addy no longer is active. I'm going to be posting a little at a time as this will be Abigaile's progress.  My blog will be a little backwards but I want to leave nothing on the other blog.
  I can't change the fact that I allowed vaccines to be given to our child but what I can do is tell people to educate themselves and go where you can keep your children safe and not harm them with drugs. We unfortunately live in a drug-laden society and those of us who wish to stay healthy and are never ill are the crazy ones for staying safe and not sick. I have come in contact with many people who we tell about our daughters story. They want to know how we do it. We don't and we haven't with our God none of what we do would be possible. Our child was given a death sentence from a severe life-threatening reaction to a vaccine. Our family has sacrificed and given years of our lives to help her and rehab her.  We have lost friends and family along the way. It's sad but no regrets. The only regret that I have is giving her the vaccine.
  To friends and family who have told us to go live off the system, we may not live like everyone else and if you choose to cut our family off- so be it I don't care anymore. Just remember that street is a two-way street. I choose not to put my children through our family has been through enough hell.
  I hope and pray through our adversity that if you have a child who you believe has had a vaccine injury or even a child that you see with similar symptoms, please message me or comment I can only give you our story, and what we have done for our child. I don't know if it will work for your child or not but that is how we started as well. We didn't know either. We tried some and they worked, tried others and it didn't work.

Wisdom

Day #3332 Victims Impact 7-5-2026

  For all that is secret will eventually be brought into the open, and everything that is concealed will be brought to light and made known ...