M.C.S.D. & treatment
This MCSD or Multiple Chemical Sensitivity Disorder is really a nightmare. I will tell you though I believe that once you figure it out and I believe there are a lot more children, or people who have this are an easily misdiagnosed. I believe that after seeing what we have gone through with our daughter we are find- tuning her care to the point that there will be nothing left un-turned.
I have found that we have been able to treat Abigaile's symptoms mainly with a very healthy Organic diet. But.... you must make sure that it is Organic. it is not necessary to go throw everything away in the kitchen and start over but you will need to have that sort of mentality. Don't beat yourself up though if it doesn't happen over night. In fact, I would say to try and implement it over a period of time. Please make sure to talk this over with your child's Pediatrician or Doctor first and foremost. I am not a Dr. this information is relevant to my OWN child ONLY. Please do not take it as medical advice. I took information that was given to us by Dr.s, Specialists, and other health care professionals. I do nothing without my daughter's Dr.s approval or advice.
Our daughter has had reactions, not typical IGE or allergic reactions but anaphylactic seizures from known and unknown allergens. We don't see hives, I wish we could see hives instead.
The immunotherapy is normally a sublingual drop placed under the tongue but it was ordered for our daughter to be placed on the wrists because she is so sensitive and anything that she has a reaction to causes a rare type of drop seizure. So we have to be extra cautious.
I started the drops a week ago. We applied one drop the first day on one wrist and rubbed the other wrist across it until it was dry. She was fine. After 3 days I decided to apply a second drop and it was a day or two that she was having drop seizures and getting sick. I think she was just getting sick but not wanting to take chances because we are talking the immune system here I stopped the therapy as she had lots of mucous and so if she had a reaction to the immunotherapy then I would not have known because that is how it presents itself is through edema, swelling , drop seizures, then a tonic seizure. I would rather not take a chance so as soon as she is well again. We will start back again. I am enclosing the links above hopefully this can help give you more treatment possibilities if you have a child with severe allergies (sensitivities- for those of us who don't always show up on the allergy scale).
Some of the items that our daughter has a reaction to is some foods, everything prepackaged, preservatives, food coloring, dyes, additives, corn and corn solids, crayons, water colors, markers, glue, most clothing items unless it is 100% organic cotton, cleaning products (we used botanical products),toothpaste, most haircare products, we use everything botanical and organic that we can. She has had seizures with most medications as well due to the binding agents used so we use a compound pharmacy that is recommended by her Physician. We even have to be cautious with laundry detergent and dish detergents. There is NO restaurants, NO grocery stores (no not even Whole Foods or Mothers markets or any other grocery store ) that we can obtain food for her. There are many stores that she can not even go into because of the starch and sizing in the clothing. It is difficult for her to go into a fabric store, she can not spend a lot of time there. We purchased an all organic mattress with latex (a natural rubber substance) we have had it two years, she can tolerate sleeping 1-2 nights on it and no more as she will have drop seizures. She has had allergic reactions resulting in seizures from cups, detergents on others, another time was a therapist was burning candles at home then coming to treat our daughter and our daughter would have seizures.
I home school our daughters as the schools can not provide a safe environment for her. They can not provide food for her. When we are hospitalized, we prepare our own foods and take to the hospital for her.
We haven't had a vacation since she was born. When we have to travel, even over an hour away we take food with us and prepare in advance freezer meals. If we stay in a hotel we have to pay for an upgrade for an allergy free room and request a kitchenette to stay so we can prepare foods.
Her clothing, bedding and anything that she could come into contact with including other people can trigger seizures for her.
She can not have a normal birthday party with other children because of the chemicals and we have to make her cake home made because of all the allergens. We have done a few diet modifications trying many foods, elimination diet modification, Specific Carbohydrate, and Gluten Free Casein Free. We currently follow a rotation diet with elimination diet and we follow the Primal or Whole Foods diet modification. Please see food for our plan for food. She has many more foods that she tolerates now than she did when we started this at age 5 months. Please email me should you have any questions.
********** Please Read ******************************
Alcohols and glycols
- ethylene glycol
- propylene glycol
- nalidixic acid
- valproic acid
- benztropine mesylate
- optic cyclopentolate
- carbon dioxide
Drugs of abuse
- lysergic acid diethylamide (LSD)
- methamphetamine ("ice")
- phencyclidine (PCP)
- other sedative-hypnotic agents
- ethyl ether
- eucalyptus oil
- methylene chloride
- pine oil
- turpentine oil
- carbon monoxide
- benzene hexachloride (Lindane)
- N,N-diethyl-m-toluamide (DEET)
- edetic acid (EDTA)
- bismuth salts
- muscimol-ibotenic acid
- lithium carbonate
Nonsteroidal anti-inflammatory drugs (NSAIDs)
- mefenamic acid
- akee (hypoglycins)
- angel's trumpet (belladonna alkaloids)
- azalea (grayanotoxin)
- bleeding hearts (isoquinoline alkaloids)
- Carolina jasmine (Gelsemium)
- Christmas rose (glycosides)
- daffodil (narcissine, lycorine)
- deadly nightshade (solanine alkaloids)
- golden chain (quinolizidine alkaloids)
- ground hemlock (Taxus)
- juniper (essential oils)
- jimson weed (solanaceous alkaloids)
- Jerusalem cherry (solanine alkaloids)
- mountain laurel (cytisine)
- poison hemlock (Conium maculatum)
- rhododendron (grayanotoxin)
- rhubarb (oxalic acid)
- strychnine nux vomicus
- tobacco (nicotine)
- umbrella plant (essential oils)
- water hemlock (cicutoxin)
- yew (Taxus)
Radiographic contrast media
- diatrizoic acid
Sedative hypnotics reversal agents
- imidazoline class
- measles vaccine
- pertussis vaccine
- ergot alkaloids
- hydrogen sulfide
- thyrotropin-releasing hormone